Well, it is something to cheer about. Our Dave only has to go to the hospital once a month now, that's right, just once a month, for blood work, a Zomader infusion, and his anti-biotic. This is huge! Once a month! It is truly a wonderful Christmas gift to his family to see him so not having to go and get this test and that test, and have this pain and that pain, and have purple skin or blue skin?!?? He certainly still has a ways to go, but his present situation is more tolerable than before. He does have some pain, but not so much that he has to take lots of drugs, just some drugs. (He has moved out of 'loopy-ville' for the time being.)
So, as we get together with our family and friends this year to celebrate our love for one another, let's keep a happy thought for Dave and his family, that there will be no more set-backs and no more side effects, he's had enough already!
Wishing you all a very Happy Holiday and the anticipation of a Terrific New Year. And thanking you ALL again for whatever you have done to support Dave, Kathy and their family this past year. Every one is a link in the chain, helping to heal him, inside and out.
Marilyn
Thursday, December 20, 2007
Wednesday, December 12, 2007
Yikes!!!
Time sure does fly. I can't believe that it has been nearly two weeks since a post has appeared. The good news is that it means there is nothing much to report. I have spoken to Dave a few times, and he remains very upbeat and positive. He has a bit of the sniffles of late and is hoping to get rid of that soon. This week he is having his 'calcium' infusion and antibiotics through an aspirator. The Docs feel that it is the antibiotics that have given him the skin problems, so he actually breathes them in. He is in this big tent thing. It sounds funky. He had his blood work done on Monday, so hopefully I will get a chance to talk to him today to find out the results from all of his tests.
I will keep you posted.
In case you had any holiday ideas, I must remind you that Dave can only have food that has been freshly prepared within the last 24 hours. Anything beyond that time period he can't eat.
Stay safe during the holidays-Be well-And keep a happy thought.
Marilyn
I will keep you posted.
In case you had any holiday ideas, I must remind you that Dave can only have food that has been freshly prepared within the last 24 hours. Anything beyond that time period he can't eat.
Stay safe during the holidays-Be well-And keep a happy thought.
Marilyn
Saturday, December 1, 2007
He Is So Getting There!
Dave and I finally made a connection the other day. (I got kicked out of the library for being on my cell phone when he called, so I left. Talking to Dave-much more important!) He has been doing very well these days. Aside from some muscle and bone pain, which I think he expected but not quite this painful. So he still needs to take some pain medication, but he is not doing the full blast 'loopy-de-loo' dosage. He is up and around, ignoring the pain and the skin thing as much as possible. (He still is having issues with his skin!) But for a 'newby stem cell transplant patient', I would say that he is medically and mentally a whole lot better than we all thought he would be at this stage.
It has already been 10 months since Dave was diagnosed, and from the Myeloma standpoint, he is healthier now than he was in February. And in these past 10 months, lots of other things have taken place. We watched as our friend fought for his life; we stood by him and his family and helped in all the many ways that we could; we threw one hell of a great party: we all became connected through this Blog and with our happy thoughts; and we now get to enjoy the fruits of all the labor that went in to getting him well.
And I am very happy to report all of this wonderful news.
Stay connected with your happy thoughts.
Marilyn
It has already been 10 months since Dave was diagnosed, and from the Myeloma standpoint, he is healthier now than he was in February. And in these past 10 months, lots of other things have taken place. We watched as our friend fought for his life; we stood by him and his family and helped in all the many ways that we could; we threw one hell of a great party: we all became connected through this Blog and with our happy thoughts; and we now get to enjoy the fruits of all the labor that went in to getting him well.
And I am very happy to report all of this wonderful news.
Stay connected with your happy thoughts.
Marilyn
Wednesday, November 14, 2007
Riding Cloud 9
Oh, it's such a lovely story to tell. David had his all day doctor visit, Tuesday, and by all accounts he is doing great!! Dr. Anamur has told him that he is like a new patient and will have to be medically treated as such. So that means the tests all have to be done over again. And, hopefully, what it also means is that the transplant has put him in an earlier stage of the Myeloma. And that is fantastic news.
Although his day was very long on Tuesday, it was not without pleasure. He had to go back and forth a bit, but when he finally got over to the Cancer Center, and was able to go in and see 'his nurses', he was greeted with tears and hugs and kisses from Theresa, Ellen and Indy (because they all miss him). He's like a celebrity, he is.
Kathy likened her new 'medical' schedule with Dave to 'being on cloud 9'.
What a relief.
Oh the power of those Happy Thoughts!
Marilyn
Although his day was very long on Tuesday, it was not without pleasure. He had to go back and forth a bit, but when he finally got over to the Cancer Center, and was able to go in and see 'his nurses', he was greeted with tears and hugs and kisses from Theresa, Ellen and Indy (because they all miss him). He's like a celebrity, he is.
Kathy likened her new 'medical' schedule with Dave to 'being on cloud 9'.
What a relief.
Oh the power of those Happy Thoughts!
Marilyn
Saturday, November 10, 2007
It's a Turtle's Pace
I had the pleasure of talking to Dave last night. He sounds really great. Aside from some knee pain which he has determined is due to 'overdoing it', he said he feels pretty good. He feels that his medical progress is definitely going forward, as opposed to backward. It's just going 5mph! But luckily, he has learned the art of patience and positive thinking, both of which have helped him be triumphant. His progress is slow, but gaining each day. He has had the pleasure of Olivia's company overnight already, and felt strong enough to drive her home once. So that's huge.
Next Tueday he will be seeing Dr. Anamur, and we will have some proper numbers. But it appears from how he feels, that those numbers will continue to be good.
He and I made a pact to check in with each other on Wednesday's, like we used to before the stem cell transplant, so that I can keep you all up to date on what's going on.
Happy Thoughts Accepted Gratefully,
Marilyn
Next Tueday he will be seeing Dr. Anamur, and we will have some proper numbers. But it appears from how he feels, that those numbers will continue to be good.
He and I made a pact to check in with each other on Wednesday's, like we used to before the stem cell transplant, so that I can keep you all up to date on what's going on.
Happy Thoughts Accepted Gratefully,
Marilyn
Wednesday, October 31, 2007
Getting to the Edge of the Woods
I had an opportunity to speak with Dave yesterday, and he sounds pretty good. I happened to have caught him on a day when he was a little wiped out, because he did a little too much the day before. But, it's nice to report that he was 'able' to do something, (a small workout, changing screens on the porch), even if it means that he feels crummy the next day. He said that he just needs to figure out how much is too much.
It was nice to hear that he was feeling well enough to do something. Hopefully, he is through the worst of this thing. Obviously, time will tell. But it appears, for the moment anyway, that the stem cell transplant is going to work for him. His numbers still remain very good.
No slacking with the Happy Thoughts. He still needs us and as long as we all 'think' they work, they will.
Marilyn
It was nice to hear that he was feeling well enough to do something. Hopefully, he is through the worst of this thing. Obviously, time will tell. But it appears, for the moment anyway, that the stem cell transplant is going to work for him. His numbers still remain very good.
No slacking with the Happy Thoughts. He still needs us and as long as we all 'think' they work, they will.
Marilyn
Friday, October 19, 2007
A Small, But Funny, Diversion
Since the beginning of this blog, I have kept us all up to date on Dave's medical, physical and emotional condition. Except for maybe one or two posts, they have all been pretty much related to Multiple Myeloma, compression fractures, purple skin conditions, etc, etc.
Well, not today. Come with me if you will to Las Vegas, where we meet John Pyle, a very good friend of Dave's, who after reading one of the blog posts becomes concerned, as many of you did, about Dave's cold, little, bald head. Well, John decides that since he is taking a business trip to Pakistan, he might as well pick him up a nice little warm turban. But he couldn't find a turban ?? so he makes another choice. John phones Dave's mom from Pakistan to tell her that he can't find a turban and that he has purchased another kind of head covering, but he can't remember what they call it so he tells her that it's the little hat that the organ grinder monkey wears. - a fez. Dave and his mom had quite a giggle over that one and John, wanting to protect his purchase, carried this thing through 4 different airports to get him home safely.
So without further ado, I give you Dave, with his permission, in his new Fez!
He's a Cutie!
Marilyn
Posted by Marilyn Tremblay at 9:30 AM 0 comments
Well, not today. Come with me if you will to Las Vegas, where we meet John Pyle, a very good friend of Dave's, who after reading one of the blog posts becomes concerned, as many of you did, about Dave's cold, little, bald head. Well, John decides that since he is taking a business trip to Pakistan, he might as well pick him up a nice little warm turban. But he couldn't find a turban ?? so he makes another choice. John phones Dave's mom from Pakistan to tell her that he can't find a turban and that he has purchased another kind of head covering, but he can't remember what they call it so he tells her that it's the little hat that the organ grinder monkey wears. - a fez. Dave and his mom had quite a giggle over that one and John, wanting to protect his purchase, carried this thing through 4 different airports to get him home safely.
So without further ado, I give you Dave, with his permission, in his new Fez!
He's a Cutie!
Marilyn
Posted by Marilyn Tremblay at 9:30 AM 0 comments
Tuesday, October 16, 2007
He Sounds Good!
I got a phone call from David today and he sounded pretty darn good. Kathy took him into Boston today for a follow-up visit and the Docs are very impressed with his numbers. They said as far as the Stem Cell Transplant goes, he is still doing quite well. His skin is healing, but slowly. He claims to look like he has a really fantastic tan. Thin, though. But he was optimistic that if he could bulk up like he did before the transplant, then he could do it again. So he is taking baby steps towards gaining weight, bulking up, getting the rest that he needs and just being him again. It was oh so lovely to talk with him, he sounded the same to me, except just a bit pooped.
He apologizes to everyone for not having the strength to get back to each of you who have emailed him or written in the Guest Book or sent snail mail to the house. Not to worry, hang in there, he will get back to you soon.
I wanted you all to rest your head on your pillow tonite with the image of David being 'Good'.
Thanks to your Happy Thoughts.
Marilyn
He apologizes to everyone for not having the strength to get back to each of you who have emailed him or written in the Guest Book or sent snail mail to the house. Not to worry, hang in there, he will get back to you soon.
I wanted you all to rest your head on your pillow tonite with the image of David being 'Good'.
Thanks to your Happy Thoughts.
Marilyn
Monday, October 15, 2007
There's a Light
According to Kathy, there is a tiny light at the end of this tunnel for Dave. He is getting better each day, but it is slow. This morning he did call Moe and have a chat. He said he was feeling good enough to chit-chat with someone, good sign. Kathy sounded pretty up beat on the phone today, also a good sign.
The healing continues.
Keep a happy thought.
Marilyn
The healing continues.
Keep a happy thought.
Marilyn
Wednesday, October 10, 2007
It Gets Better and Better.
Well, Dave's coming home tomorrow! The purple skin has turned a 'lighter shade of pale' and he appears to be free of infection. He is still a little bloated, but that is also getting better each day. He's a fast healer. The power of wanting to go home badly enough, I guess.
The Docs are pretty sure that they have isolated the medicine that caused the reaction and they have taken him off of that. He will still have to be pill popping, but not that one!
The folks at Brigham and Women's, although very concerned about this skin problem, are extremly pleased with the way Dave is progressing as a Stem Cell Transplant patient. His blood count numbers continue to improve and that is some really good news. Once he gets all of these annoying, uncomfortable issues out of the way, he should be good. Kathy told me tonite that the Docs are very pleased with his health otherwise.
So, he is on the road to recovery. I will try to keep you informed of his progress at home.
Keep a happy, healthy thought.
Marilyn
The Docs are pretty sure that they have isolated the medicine that caused the reaction and they have taken him off of that. He will still have to be pill popping, but not that one!
The folks at Brigham and Women's, although very concerned about this skin problem, are extremly pleased with the way Dave is progressing as a Stem Cell Transplant patient. His blood count numbers continue to improve and that is some really good news. Once he gets all of these annoying, uncomfortable issues out of the way, he should be good. Kathy told me tonite that the Docs are very pleased with his health otherwise.
So, he is on the road to recovery. I will try to keep you informed of his progress at home.
Keep a happy, healthy thought.
Marilyn
Monday, October 8, 2007
The Power of the People
I just got off the phone with Kathy and she is feeling very upbeat tonite because David is getting better!! Woo-Hoo!! She said that the Docs are pretty positive that they are battling an infection and a drug reaction at the same time. Narrowing it down to that has helped them to bring Dave some relief. Kathy said that his arms are not as swollen, and Dave feels that by tomorrow his legs will get back to normal. So, good news tonite!!
He will be in Brigham and Women's probably for the rest of the week, and hopefully they will not send him home until this skin condition has cleared up.
Way to go people, your happy, thoughtful energy went right to the healing process.
Marilyn
He will be in Brigham and Women's probably for the rest of the week, and hopefully they will not send him home until this skin condition has cleared up.
Way to go people, your happy, thoughtful energy went right to the healing process.
Marilyn
Sunday, October 7, 2007
He's Got Them All Stumped
Dave has a herd of Specialists, coming in and out all day at Brigham and Women's, and not one of them has been able to get a handle on what is causing his symptoms. The way that Kathy describes him, he sounds like a 'Purple Shrek'. The rash is all over his body, and it's itchy and painful, and now he is swollen again because of the fluids. They would like to try to take him off the anti-biotics to see if he is allergic, but that might have devasting consequences, being that he has little or no immune system. It's a pickle, and still Dave does not complain. He is, incredulously, still the mild mannered, sweet guy that we all know and love-he actually apologizes to Kathy and the medical staff for making them work so hard to care for him. It's amazing that he can maintain his humility in such a chronically frustrating and uncomfortable situation.
We still need to keep it happy, for Dave and for Kathy.
Marilyn
We still need to keep it happy, for Dave and for Kathy.
Marilyn
Saturday, October 6, 2007
Oh Yeah, They Found Him a Bed at Brigham & Women's
I just got off the phone with Phyllis and she said that they will be transporting David to Brigham and Women's before the night is over. His physician, Rick, and the oncologist, Dr. Ardman both agreed that he needs a more sterile environment. Of course, Dave is not happy about having to go back to Boston, but the rest of us are thankful that they have a bed for him. Hopefully, they will be able to get a handle on this skin and mouth condition. But, in the meantime, they can keep him hydrated.
I will continue to update the Blog as I get info from either Kathy or Phyllis.
Stay tuned.
Keep it coming. Happy Thoughts, that is.
Marilyn
I will continue to update the Blog as I get info from either Kathy or Phyllis.
Stay tuned.
Keep it coming. Happy Thoughts, that is.
Marilyn
The First 'After Transplant' Infection
Dave's Mom called me this morning to let me know that David has been taken to Lowell General Hospital with the first, of hopefully not too many, immune deficient infections. She said that he had thrush pretty badly in his mouth and throat which was causing him alot of pain and, therefore, causing a serious dehydration problem. (He had this same problem when he was first diagnosed and was in LGH back in March.) He sounds pretty miserable. I haven't spoken with Kathy yet, hopefully I will get that chance a little later. If I do, I will update you all as soon as possible. We need to stick together here at this junction for Dave. Lots of positive energy tossed in his direction is the best medicine.
It's hard, but keep it Happy.
Marilyn
It's hard, but keep it Happy.
Marilyn
Tuesday, October 2, 2007
News From Flying Rock Road
Dave is doing as well as can be expected for what he has endured these past 8 months and especially the past few weeks. He sort of thought that once he was past the stem cell transplant hurdle, the rest would be a walk in the park, but it hasn't been a nicely paved road. The rash has still got the better of him and they were supposed to go to Dana Farber today for a check-up and hopefully some relief from this itchy thing. He is very tired and weak and cold and thin. It is going to take him a while to get to a 'more happy than not' place. But being home will move that process along a little quicker than being in the hospital. He is very susceptible to germs and needs to wear a mask and gloves when he has to go out. His little bald head was chilly, so Kathy bought him a nylon stocking cap that football players wear under their helmets. It sounds like the very latest fashion in mens headwear!! giggle. But it keeps him warm.
I'm sure that I don't have to tell you why you keep a happy thought for Kathy and Dave-you know.
Later,
Marilyn
I'm sure that I don't have to tell you why you keep a happy thought for Kathy and Dave-you know.
Later,
Marilyn
Friday, September 28, 2007
Safe and Sound
Well, I just received a call from Dave's Mom who told me that he has made it home. He is very happy to be there, as you would guess. Hopefully, his own bed will provide him with the rest that he needs to get stronger and fatter. According to Mom, he is quite thin.
But, the first leg of this thing is over for him-on to the next one, which is keeping him germ/virus/bacteria free for at least 100 days.
Fingers crossed, Happy thoughts.
Marilyn
But, the first leg of this thing is over for him-on to the next one, which is keeping him germ/virus/bacteria free for at least 100 days.
Fingers crossed, Happy thoughts.
Marilyn
Thursday, September 27, 2007
It's a 'Home'run!
That's right. He is coming home tomorrow, barring any unforseen circumstances. He is a little weak today, and his food still tastes horrible, but our little buddy is going home. Kathy will be picking him up around 11 am. They are both very excited. His medical team is extremely pleased with his progress, aside from the rash. Hopefully, his taste buds will return in a few weeks. The lethal doses of chemo last a while and that is what the Docs think has taken his taste buds away. And, hopefully, his rash will go away quicker now that he is off some of the meds. He is not leaving empty handed though. He still has to add about 10 new meds to the all day pill parade.
It's a Bird, it's a plane, no it's Super Dave. ( giggle) He doesn't leap tall buildings in a single bound, but he can kick the stuffing out of Myeloma. Nice.
One Happy Thought equals One Happy Dave.
Marilyn
It's a Bird, it's a plane, no it's Super Dave. ( giggle) He doesn't leap tall buildings in a single bound, but he can kick the stuffing out of Myeloma. Nice.
One Happy Thought equals One Happy Dave.
Marilyn
Tuesday, September 25, 2007
The Comeback Kid
Well, he has done it. Kathy told me today that even the Docs are impressed with his numbers. His white cell count was 150 yesterday and it jumped up to 1000 today. That means that he is only about 200 away from having somewhat of a functioning immune system. Going home this week is still a possibility. Kathy also said that she felt like she had her 'honey' back because Dave sounded so great on the phone today.
This puts him a little bit ahead of 'right on track'. Of course, then we have to deduct points :-( for the 'rash', which is getting better. Still not too sure what that is?!?!
When he does come home, he will be quarantined for about 100 days. Any small virus or bacteria can really set him back.
That's the news of today.
Keep thinking happy!
Marilyn
Footnote: We are so lucky to have Dana Farber and Brigham & Womens. Both facilities have taken such good care of Dave (and Kathy). Every time her and I talk she tells me what wonderful care he is getting.
This puts him a little bit ahead of 'right on track'. Of course, then we have to deduct points :-( for the 'rash', which is getting better. Still not too sure what that is?!?!
When he does come home, he will be quarantined for about 100 days. Any small virus or bacteria can really set him back.
That's the news of today.
Keep thinking happy!
Marilyn
Footnote: We are so lucky to have Dana Farber and Brigham & Womens. Both facilities have taken such good care of Dave (and Kathy). Every time her and I talk she tells me what wonderful care he is getting.
Sunday, September 23, 2007
Bad to Worse and Back, Hopefully Soon
Well, as we suspected, based on all of the info that Kathy and Dave had to read before he did this, he has gotten a little worse since my last update. I spoke with Kathy yesterday, who spent her birthday in the hospital with her darling. She said that the rash Dave has is awful, it looks like 3rd degree burns all over. The staff takes very good care of him, and they are quite sure that this is a reaction to one of the anti-biotics that he has to be on. Besides the rash, they keep reassuring Dave and Kathy that he is right where he should be as far as his medical progress. His numbers are good, (red/white blood cell counts), and he is staying hydrated. Although, it is a balancing act between keeping him hydrated and having him retain fluids??!! Kathy said that the staff has a handle on that so.... She said that he was a little puffy with fluid retention.
The Docs are looking at releasing him hopefully next week. He will need to get a bit better before they will let him go home. And for at least the first 100 days, he will have to be isolated from germs.
This is a huge ordeal for the both of them, and the details of their ordeal can be somewhat confusing and overwhelming to write about on the blog. I am trying to condense it into something understandable to all. But, what we do need to know is this, they are tough, and they are strong, and Dave is very determined to be at home with his family. He is in the best place he can be for this procedure and Kathy says that he gets excellent care. And as miserable as Dave is, Kathy says that he still has his wonderful sense of humor and his undying good nature.
It's still all good, considering.
Enjoy your coffee in the morning, hug your buddies, do one nice thing for someone else tomorrow, even if it's just a Happy Thought.
Marilyn
The Docs are looking at releasing him hopefully next week. He will need to get a bit better before they will let him go home. And for at least the first 100 days, he will have to be isolated from germs.
This is a huge ordeal for the both of them, and the details of their ordeal can be somewhat confusing and overwhelming to write about on the blog. I am trying to condense it into something understandable to all. But, what we do need to know is this, they are tough, and they are strong, and Dave is very determined to be at home with his family. He is in the best place he can be for this procedure and Kathy says that he gets excellent care. And as miserable as Dave is, Kathy says that he still has his wonderful sense of humor and his undying good nature.
It's still all good, considering.
Enjoy your coffee in the morning, hug your buddies, do one nice thing for someone else tomorrow, even if it's just a Happy Thought.
Marilyn
Tuesday, September 18, 2007
It's An All Day 'Pill Parade'
Dave tells Kathy that he is feeling good, except for the fact that he can't keep his eyes open-he's so tired, AND that he has no energy, AND that he feels like puking all the time (he hasn't yet), AND the food sucks!, AND he has a 'killer' rash in some spots on his body, AND it takes him all day to get the meds down-but he insists that he is GOOD! What a guy, huh? Believe it-these symptoms are normal for what he has endured the last few weeks. He, as we expected, will get a little bit worse, before he gets better. The Medical Staff at Brigham & Womens tells Kathy that Dave is right where he should be. That's great. He is coming along the way they expect him to and he knows what to expect, so he is toughing it out. Let's just keep him in our thoughts that the worst is over for him by the week-end.
There is strength and comfort in your happy thoughts for him.
Marilyn
Oh and a P.S. for those of you who have been e-mailing him. He may not be able to get back to you right away. I know Kathy is reading them to him, so you can keep writing. He is just so tired that writing back is difficult, but he will eventually.
There is strength and comfort in your happy thoughts for him.
Marilyn
Oh and a P.S. for those of you who have been e-mailing him. He may not be able to get back to you right away. I know Kathy is reading them to him, so you can keep writing. He is just so tired that writing back is difficult, but he will eventually.
Sunday, September 16, 2007
He's Hanging Tough
I heard from Kathy today and she said the the Docs are very happy with Dave's platelet counts. He doesn't feel well, but he is hanging in. She said that he does do a bit of exercise every hour or so. The Docs have told him that the people who do the best with stem cell transplant are the people who keep active, despite how they feel. And we know how Dave loves to keep fit, so he has that in his favor. He is maintaining his weight, which is a really good thing. Progress is heading in the right direction for him, no setbacks, and he is not expecting any. His attitude is superb, he definitely has enough drive and determination to get through this. And he really is a very handsome, bald guy.
Bravo!! Dave!!! You are the Hero we all want to be. Courageous, Determined, Brave, and all with your usual Quiet Reserve. We will have to get you a SuperHero costume!
Keep those Happy Thoughts.
Marilyn
Bravo!! Dave!!! You are the Hero we all want to be. Courageous, Determined, Brave, and all with your usual Quiet Reserve. We will have to get you a SuperHero costume!
Keep those Happy Thoughts.
Marilyn
Friday, September 14, 2007
They're In
Well, as of yesterday, Dave has 5 million of his own stem cells back in his body, kicking Myeloma Butt. The staff at Brigham and Women's told Kathy today that Dave is exactly where they want him to be as far as 'medical progress'. That's great news. He is feeling tired, somewhat nauseous, but he is eating and able to socialize for a few hours at a time. That's also great! Don't despair if you have sent him an e-mail and he hasn't responded. That does knock the wind out of him since he is a 'one finger pecker' typist. It's good for him to hear from you, though, just know that he is not ignoring your message. When he is stronger, he will get back to you.
It seems, after talking to Kathy, that Dave is really doing pretty well, considering the circumstances. He probably will get a little bit worse, before he gets better. Chemotherapy tends to rear its ugly side effects a week or so after it gets into your body.
So far, for our friend Dave, things look quite positive.
It's gotta be those Happy Thoughts, ya think?
Marilyn
It seems, after talking to Kathy, that Dave is really doing pretty well, considering the circumstances. He probably will get a little bit worse, before he gets better. Chemotherapy tends to rear its ugly side effects a week or so after it gets into your body.
So far, for our friend Dave, things look quite positive.
It's gotta be those Happy Thoughts, ya think?
Marilyn
Tuesday, September 11, 2007
Let's Keep In Touch
I just spoke with Kathy from the hospital. (She was talking to me through a mask which she said was getting all 'lipsticky' on the inside. giggle)!! Dave is doing tremedously well. He is still harboring very positive spirits. His hair is falling out a little at a time, but according to the nurses he still looks like he has a head of hair. Kathy said that he has a nice private room, and that he is getting alot of attention. Today will be the beginning of the medical process. High doses of Chemo today and tomorrow and then re-infusion on Thursday. And then we wait. So far, everything that has had to take place in the procedure for him has come to pass at the top of the A list compared to others in his situation, so we can only hope for straight A's through the rest of the process.
I am going to post the address to the hospital so that you can send him greetings. Cards and letters only, no flowers, no fruit, no door-to-door salesmen, no candy-grams or singing telegrams (giggle). I will also post his e-mail address. He has access to a lap top and the internet. E-mail is the preferable choice of contact with Dave. Everything that comes into his room has to go through a process of de-contamination. Obviously, correspondence through e-mail is safer for him. He doesn't want any 'viruses' computer or otherwise, so when you send him an e-mail, please indicate in the subject who you are if it's not clear by your e-mail address. Thanks!
David Tousignant
c/oBrigham & Women's Hospital
Floor 6B-Room 39
75 Francis Street
Boston, MA 02115
E-mail address : katmonstor@AOL.com
Happy, happy, happy
Marilyn
I am going to post the address to the hospital so that you can send him greetings. Cards and letters only, no flowers, no fruit, no door-to-door salesmen, no candy-grams or singing telegrams (giggle). I will also post his e-mail address. He has access to a lap top and the internet. E-mail is the preferable choice of contact with Dave. Everything that comes into his room has to go through a process of de-contamination. Obviously, correspondence through e-mail is safer for him. He doesn't want any 'viruses' computer or otherwise, so when you send him an e-mail, please indicate in the subject who you are if it's not clear by your e-mail address. Thanks!
David Tousignant
c/oBrigham & Women's Hospital
Floor 6B-Room 39
75 Francis Street
Boston, MA 02115
E-mail address : katmonstor@AOL.com
Happy, happy, happy
Marilyn
Haven't Heard Anything Yet
What I do know is that Dave was feeling very good when he and Kathy went to Brigham and Women's on Sunday night. Today will be his first heavy dose of Chemo and tomorrow, another. And Thursday will be the re-infuse, which is a little bit of a change from the original schedule.
As soon as I hear from Kathy, I will let you all know how he is doing.
Seriously, it's Happy Thought time.
Marilyn
As soon as I hear from Kathy, I will let you all know how he is doing.
Seriously, it's Happy Thought time.
Marilyn
Tuesday, September 4, 2007
It's All Good :-)
Well I never thought that I would be delivering any news to you all at this early stage in the harvesting process, but, AMAZINGLY-he's done. They told Dave and Kathy that they were able to get 9.7 million Good stem cells from him today. The Docs expected it would take 2 to 4 days to get that much. He is a SuperDude. So now he and Kathy get the rest of the week off to enjoy their home and each other. (And rest up a bit, he was pretty tired tonite.)
So, that's it for the harvest. The next stop is Brigham and Women's, on the 9th.
It's All Good!
Happy Thought, Happy Thought. Happy Thought.
Marilyn
So, that's it for the harvest. The next stop is Brigham and Women's, on the 9th.
It's All Good!
Happy Thought, Happy Thought. Happy Thought.
Marilyn
Monday, September 3, 2007
September-Harvest Time :-)
Well, Labor Day has brought an end to the week-long Nupogen injections and by all counts Dave is full of stem cells and ripe for the picking (or should I say poking!) Kathy and Dave will be at Dana Farber at 7 am Tuesday morning, and for as many mornings as it takes through Thursday, to 'harvest' millions of those little buggers. The Docs told them that it might only take 2 instead of 4 days. Let's hope for that, so that he can have a few days off.
I will keep you as up-to-date as I can with his progress.
Happy Thoughts Always Welcome.
Marilyn
I will keep you as up-to-date as I can with his progress.
Happy Thoughts Always Welcome.
Marilyn
Friday, August 31, 2007
Immune System-Check!
Dave had blood work done yesterday because they needed to see where his red/white cell counts were. If he was too low they were going to have to give him a blood transfusion. But, not the case. His counts are really good for someone who has had such a strong dose of Chemo. The 'Tiger in His Tank', according to Dave, is the Ambrotose that he has been faithfully taking since the onset of his condition. A friend of his recommended it for keeping the immune system strong and it does seem to be working. Kudos to Annie Ogden for getting him started on that. And Kudos to Dave for being such a good patient and taking it all the time.
More good news, he has driven himself to the Cancer Center for his injection a couple of times this week. That means he is feeling good.
Those Happy Thoughts Just Keep On Working,
Marilyn
More good news, he has driven himself to the Cancer Center for his injection a couple of times this week. That means he is feeling good.
Those Happy Thoughts Just Keep On Working,
Marilyn
Thursday, August 30, 2007
Cute Story
David and Kathy decided to have Olivia, Dave's youngest daughter, sleep over the other night. In the morning when it was time for breakfast, they made oatmeal. When Dave went to take a spoonful out of his bowl, Olivia, seeing that the oatmeal was very hot, decided to blow on her Papa's spoonful of oatmeal to cool it off for him so that he wouldn't burn his mouth. It really is the little things in life, isn't it.
Well, as of today, Dave has been told that he needs to wear a mask when he goes out to the Cancer Center for his injection. The high dose of Chemotherapy that he was given last Friday is about to do its job and knock his immune system down a few pegs. The Nupogen seems to be doing its work. Dave is in quite a lot of body pain, which means that the injections are encouraging his stem cells to proliferate. There is alot of pressure on the bones because the bone marrow is filling up. There will hopefully be some relief when the stem cells are harvested next week, but in the meantime, Percocet is working just fine. Just a few more days and he should be past this step and on to the next.
Happy thoughts are always welcome!!
Marilyn
Well, as of today, Dave has been told that he needs to wear a mask when he goes out to the Cancer Center for his injection. The high dose of Chemotherapy that he was given last Friday is about to do its job and knock his immune system down a few pegs. The Nupogen seems to be doing its work. Dave is in quite a lot of body pain, which means that the injections are encouraging his stem cells to proliferate. There is alot of pressure on the bones because the bone marrow is filling up. There will hopefully be some relief when the stem cells are harvested next week, but in the meantime, Percocet is working just fine. Just a few more days and he should be past this step and on to the next.
Happy thoughts are always welcome!!
Marilyn
Tuesday, August 28, 2007
He's Hanging In
It has been an up and down weekend for Dave. After Friday's Chemo, he felt okay until later in the evening and the next morning. He was experiencing fluid retention and some serious nausea, and being that it was Saturday, Kathy had an awful time getting in touch with someone to get a prescription for Lasix. Once she did, he started to feel a little better. Sunday was the first of eight Nupogen injections, which went well. As of this posting he has had two of these injections and so far, no side effects, although I'm told that he does carry a little bucket with him just in case his nausea decides to get eruptive.(giggle-giggle) So, for the most part, he seems to be doing well. He had such a great night last night that Kathy called Phyllis just to tell her how wonderful it was to see him feeling so good. Dave is one of the lucky ones who knows how to 'live' with cancer. He has a strong will, he can appreciate a good feeling (even for just a moment) and, most importantly, he has an angel by his side, who us mortals refer to as Kathy. If not for her determination, patience, and undying love and affection for this guy, his situation would be very different.
Thanks for your Happy Thoughts for Dave and Kathy!
Marilyn
Thanks for your Happy Thoughts for Dave and Kathy!
Marilyn
Friday, August 24, 2007
We'll Call This Day One.
According to his Mom, Day 1 has been half way decent for Dave. She stopped in to the Cancer Center this afternoon to see how he was doing and she said that he seemed fine. He was in and out of being sleepy and dizzy, but not much for nausea. That's one good thing. Kathy and Dave were at the Center from 9 am until about 6:30 pm. Very long day. (Of course the nurses over at the Cancer Center take very good care of them). So, he has tomorrow off and on Sunday he will start the
8 day Nupogen injections. (To make lots and lots of stem cells.)
This dose of Chemo that he had today will have knocked his immune system down quite a lot. They actually give him
an anti-biotic drip in between the Chemo. He needs to be very careful not to be around germs. Getting any kind of infection would just complicate things for him.
He is getting a lap top so that he can keep up with your messages and well wishes and funny stories, etc. while he is going through this. He should be able to use it while he is in the hospital, where he will check the Guest Book and the Blog frequently. (And be able to use e-mail).
That's pretty much it for now. If I get a chance to speak with Kathy on Saturday, I will update you.
Keep a Happy Thought,
marilyn
8 day Nupogen injections. (To make lots and lots of stem cells.)
This dose of Chemo that he had today will have knocked his immune system down quite a lot. They actually give him
an anti-biotic drip in between the Chemo. He needs to be very careful not to be around germs. Getting any kind of infection would just complicate things for him.
He is getting a lap top so that he can keep up with your messages and well wishes and funny stories, etc. while he is going through this. He should be able to use it while he is in the hospital, where he will check the Guest Book and the Blog frequently. (And be able to use e-mail).
That's pretty much it for now. If I get a chance to speak with Kathy on Saturday, I will update you.
Keep a Happy Thought,
marilyn
Thursday, August 23, 2007
He Is So Ready
I spoke with Dave today and he is ready for this thing. What a guy!! Tomorrow's Chemo treatment is an all day affair. It will be the first of three? very strong doses. (Hair loss is imminent with this type of Chemo.) I will let you know as soon as I do how he made out. Kudos to all of you who have posted such nice messages for our friend in his Guest Book. I know that he will read them again and again. Along with the many cards and letters that he continues to receive by mail. They really do make a difference.
Keep checking in.
Keep a happy thought for this dude.
Marilyn
Keep checking in.
Keep a happy thought for this dude.
Marilyn
Thursday, August 16, 2007
It's Only Just Begun...
Kathy and Dave and Ray had a very long day at Dana Farber on Wednesday. This is the beginning of the process for him. There are many tests that have to be taken before he starts on the 24th with the high dose of Chemotherapy. He managed, somehow, to emerge from the poking and proding, the 'man among men' that he is, I am told by his Mother. He remains very optimistic and in excellent spirits.
I would like to encourage you to go to the Guest Book and write a little something for Dave so that he has messages to read to give him some comfort during this procedure. Jim Doyle (who is becoming the 'Grand Master' of happy thoughts) has a little something to say about how we can help in other ways.
Also, I hope that you have all had a chance to read the latest Lion's Pride edition. If you don't get one, someone you know probably does. I will try to put it on the blog, Wendy Marshall-Hudzik, who is the 'Queen' of happy thoughts, wrote a lovely article (Class of 1970) about Dave's party and Barbara Maynard Scollan also wrote a nice article (Class of 1971). Dave was mentioned in the Hall of Fame section by his coach, Randy Whitehead, as well.
It truly is your love and friendship that keeps Dave optimistic. Let's not forget that we are on an important mission to see that he gets through this.
Thanks everyone!
Keep a Happy Thought!
Marilyn
I would like to encourage you to go to the Guest Book and write a little something for Dave so that he has messages to read to give him some comfort during this procedure. Jim Doyle (who is becoming the 'Grand Master' of happy thoughts) has a little something to say about how we can help in other ways.
Also, I hope that you have all had a chance to read the latest Lion's Pride edition. If you don't get one, someone you know probably does. I will try to put it on the blog, Wendy Marshall-Hudzik, who is the 'Queen' of happy thoughts, wrote a lovely article (Class of 1970) about Dave's party and Barbara Maynard Scollan also wrote a nice article (Class of 1971). Dave was mentioned in the Hall of Fame section by his coach, Randy Whitehead, as well.
It truly is your love and friendship that keeps Dave optimistic. Let's not forget that we are on an important mission to see that he gets through this.
Thanks everyone!
Keep a Happy Thought!
Marilyn
Sunday, August 12, 2007
Home Again, Home Again, Diggety Dog!
He just loves to be home! And finally on Wednesday night they let him go. I spoke with him today and he said that he is finally feeling better. Thursday, Friday and Saturday were not good days for him, but Sunday has turned out to be a beaute. His brother, Ray, was visiting when we spoke and Dave was his usual perky self. So, another carnival ride over, he's waiting in line for the next one.
'a happy thought is worth a thousand words '
Marilyn
'a happy thought is worth a thousand words '
Marilyn
Tuesday, August 7, 2007
Another Bump in the Road (maybe just a pimple!)
Dave was not feeling very well on Sunday, and he got so bad that Kathy took him over to the hospital, where he was admitted. He had a fever and was doing the shaky thing. Turns out it is just a minor infection. But as he is preparing for this stem cell procedure, nothing can be passed off as 'minor' to his medical team. So they have kept him in, as of tonite he has not been released. He is hoping to be going home on Wednesday. Kathy said that this should not affect the upcoming plans to start the stem cell process.
I would like to share with you all a conversation that I was fortunate enough to have today with a very nice young lady who told me that her uncle was diagnosed with end stage Multiple Myeloma at the age of 70. He also had a lot of bone damage, and she said that, aside from the year after the stem cell transplant, his last 7 years have been very good. The year after the transplant, he did experience a few respiratory infections. I was so encouraged by this story that I wanted to share it with all of you who are staying in the 'positive energy field' with regards to Dave and his situation.
So, lets keep yet another happy thought for the 'evacuation' of the infection, so that Dave can go home where he loves to be. I will keep you posted.
Marilyn
I would like to share with you all a conversation that I was fortunate enough to have today with a very nice young lady who told me that her uncle was diagnosed with end stage Multiple Myeloma at the age of 70. He also had a lot of bone damage, and she said that, aside from the year after the stem cell transplant, his last 7 years have been very good. The year after the transplant, he did experience a few respiratory infections. I was so encouraged by this story that I wanted to share it with all of you who are staying in the 'positive energy field' with regards to Dave and his situation.
So, lets keep yet another happy thought for the 'evacuation' of the infection, so that Dave can go home where he loves to be. I will keep you posted.
Marilyn
Friday, August 3, 2007
We Have Dates
Kathy and Dave have been in touch with the Docs and have set up the appointments to get the stem cell transplant started. There is quiite a lot involved and Dave is in pretty good spirits about it.
So, this is the schedule that Kathy gave me today:
Today was his last Chemo treatment at LGH. They want him to have a 3 week resting period. Rest from Chemo, not doctors. For the next 3 weeks they will be taking a ton of tests for all different kinds of things. They need to be sure that his body can handle this. Once he is cleared based on the tests, the procedure will officially begin on August 24th, starting with a very high dose of Chemotherapy that will be administered at LGH with Dr. Anamur. It's called 'mobilization Cytoxan'. I didn't find much about it when I looked it up. He has the 25th off, and on the 26th (and for the next 8 days) he will be given Nupogen injections, which, from what I understand, is the medication that produces stem cells and tricks them into entering the blood stream for easier collection (this procedure is done when a healthy host is donating bone marrow to someone else.) So, he has Labor Day off and for the following 4 days (9/4,5,6,&7) he will need to be at Dana Farber every morning at 7 am for what they call the 'harvesting' of his own stem cells. The doc's will actually take upwards of 5 million stem cells (amazing!) Kathy and Dave are on a housing list with Dana Farber so that they don't have to drive in every day. The
'harvesting' takes about 4-6 hours each time. September 8th is another day of rest, and then he enters Brigham and Women's hospital on the 9th. September 10th and 11th, he will be given the 'close to lethal' amount of Chemo. His immune system will be as non-functional as it can be after this dose. And then on the 12th, the stem cells will be re-infused.
He will remain in the hospital, under watchful care, until September 26th. That is the current release date. It's at this point that Dave needs to be extremely careful. He cannot be exposed to any kind of germ, bacteria, etc. Kathy said that the whole house has to be disinfected, (which luckily her Mom has already started), and he cannot be in the same room when someone is vacuuming. He will have to wear a mask when he goes out for at least the first 3 months. His immune system will remain very fragile for at least a year, though.
His food will have to be carefully monitored also. It's about as complicated as it gets, but it will help to give Dave a better and longer life.
His brother, Ray, is coming in tonite from Atlanta. He plans to stay for a few weeks and Dave is looking forward to spending some quality time with him.
Well, that's the schedule. Please try to use the Guestbook to send your messages to Dave. It would be beneficial to him if we could help keep his spirits up.
Thanks for your happy thoughts!
Marilyn
So, this is the schedule that Kathy gave me today:
Today was his last Chemo treatment at LGH. They want him to have a 3 week resting period. Rest from Chemo, not doctors. For the next 3 weeks they will be taking a ton of tests for all different kinds of things. They need to be sure that his body can handle this. Once he is cleared based on the tests, the procedure will officially begin on August 24th, starting with a very high dose of Chemotherapy that will be administered at LGH with Dr. Anamur. It's called 'mobilization Cytoxan'. I didn't find much about it when I looked it up. He has the 25th off, and on the 26th (and for the next 8 days) he will be given Nupogen injections, which, from what I understand, is the medication that produces stem cells and tricks them into entering the blood stream for easier collection (this procedure is done when a healthy host is donating bone marrow to someone else.) So, he has Labor Day off and for the following 4 days (9/4,5,6,&7) he will need to be at Dana Farber every morning at 7 am for what they call the 'harvesting' of his own stem cells. The doc's will actually take upwards of 5 million stem cells (amazing!) Kathy and Dave are on a housing list with Dana Farber so that they don't have to drive in every day. The
'harvesting' takes about 4-6 hours each time. September 8th is another day of rest, and then he enters Brigham and Women's hospital on the 9th. September 10th and 11th, he will be given the 'close to lethal' amount of Chemo. His immune system will be as non-functional as it can be after this dose. And then on the 12th, the stem cells will be re-infused.
He will remain in the hospital, under watchful care, until September 26th. That is the current release date. It's at this point that Dave needs to be extremely careful. He cannot be exposed to any kind of germ, bacteria, etc. Kathy said that the whole house has to be disinfected, (which luckily her Mom has already started), and he cannot be in the same room when someone is vacuuming. He will have to wear a mask when he goes out for at least the first 3 months. His immune system will remain very fragile for at least a year, though.
His food will have to be carefully monitored also. It's about as complicated as it gets, but it will help to give Dave a better and longer life.
His brother, Ray, is coming in tonite from Atlanta. He plans to stay for a few weeks and Dave is looking forward to spending some quality time with him.
Well, that's the schedule. Please try to use the Guestbook to send your messages to Dave. It would be beneficial to him if we could help keep his spirits up.
Thanks for your happy thoughts!
Marilyn
Thursday, July 19, 2007
Dana Farber Visit
Dave and Kathy's visit at Dana Farber went well. I spoke with Dave on Wednesday and he gave me the scoop. It seems that most people in Dave's position opt for the stem cell transplant the second time that the Myeloma becomes dormant. After being ill for so long, remission is a welcome break from feeling lousy, and it is very difficult to make a conscious decision to have the stem cell transplant which will make you sick again. So, they stretch out the 'feeling good' stage past the point of being in the right state to have the stem cell transplant, and therefore, would have to wait until the treatment knocks the cancer back down to the dormancy stage. Understandable.
The doctor would prefer that Dave do this the first time around, now. It sounds like Dave will follow Drs orders, but time will tell. In the last few weeks, the 'good' days have out-numbered the 'bad' for Dave, and he is enjoying them, which ultimately makes this decision even harder.
Happily, though, he is fortunate to be in the situation where a transplant is possible.
Please join me in a happy thought for Dave and Kathy,
Marilyn
If you would like to read more about what is in store for Dave concerning this procedure, you can Google 'Autologous Stem Cell Transplant'; 'Dana Farber'; or go to the Multiple Myeloma Site.
The doctor would prefer that Dave do this the first time around, now. It sounds like Dave will follow Drs orders, but time will tell. In the last few weeks, the 'good' days have out-numbered the 'bad' for Dave, and he is enjoying them, which ultimately makes this decision even harder.
Happily, though, he is fortunate to be in the situation where a transplant is possible.
Please join me in a happy thought for Dave and Kathy,
Marilyn
If you would like to read more about what is in store for Dave concerning this procedure, you can Google 'Autologous Stem Cell Transplant'; 'Dana Farber'; or go to the Multiple Myeloma Site.
Thursday, July 12, 2007
It's 'Beachy'!
Kathy and Dave set out today on a very well deserved little get-a-way, compliments of Dave's Mom. They are actually alone and spending a few nights at Ogunquit, Me. It is an 'oh, so happy' thing that Dave feels well enough to go and spend some quality time with Kathy and spend some energizing time at the ocean. The nurses at the Cancer Center were so excited at the prospect of Dave having a little vacation from illness, that they re-arranged his Chemo treatments in order to 'get the party started' as early as possible. Happy thoughts for Dave are very contagious, have you noticed?
So, all is still very good. He and Kathy go to see the Docs at Dana Farber next Tuesday to discuss the transplant and after this redeeming time at the beach, he will be ready.
Keep a Happy thought!
Marilyn
So, all is still very good. He and Kathy go to see the Docs at Dana Farber next Tuesday to discuss the transplant and after this redeeming time at the beach, he will be ready.
Keep a Happy thought!
Marilyn
Sunday, July 8, 2007
The 'Freedom' of 'Independence'
Well, I am very happy to report that Dave is feeling terrific. He has had some back pain still, but for the most part he is having some very well deserved good days. He followed Kathy up to the Manchester Airport, on the 4th, to pick up her family who decided to visit for a bit. Her Mom will be staying on for a while. And he spent the afternoon frolicking at Brian and Pat Corey's for a little cookout and a boat ride!! He has been driving himself around, actually went and got a haircut! Kathy has been his barber for the last five months. His spirits are enormously positive, it's amazing what a little freedom can do for a person.
I guess 'Independence' Day has a new meaning for Dave.
It's all good for now.
He has an appointment with the Dana Farber Docs-so check in later for an update.
Keep a happy thought!!
Marilyn
I guess 'Independence' Day has a new meaning for Dave.
It's all good for now.
He has an appointment with the Dana Farber Docs-so check in later for an update.
Keep a happy thought!!
Marilyn
Friday, June 29, 2007
Here We Go!!!
Well, as of yesterday, our Dave has 99.9% decided to go ahead with the Stem Cell Transplant. He will be calling the Docs at Dana Farber in the next week, to set up an appointment to discuss the preliminary procedures and the time table. Everything has to happen within a certain time limit, and now is the time.
For two reasons, first from a medical standpoint, the Myeloma is in a dormant stage and this is the best time to get the healthy stem cells to transplant, and second, from an emotional standpoint, Dave is in the best spirits that he has been in since the inception of this life changing situation.
His outlook, from all angles, looks very good. There will be a period of 'at the edge' kind of drama, but so far he has shown us that he is capable of handling the 'cliffhangers'.
What a guy!! We are blessed to be able to call him husband, Daddy, son, brother, and friend.
So, here we go-please sign his guestbook so that he can have your comforting and happy messages to bring with him to the hospital. Your words are his best medicine.
Keep a happy thought.
Marilyn
For two reasons, first from a medical standpoint, the Myeloma is in a dormant stage and this is the best time to get the healthy stem cells to transplant, and second, from an emotional standpoint, Dave is in the best spirits that he has been in since the inception of this life changing situation.
His outlook, from all angles, looks very good. There will be a period of 'at the edge' kind of drama, but so far he has shown us that he is capable of handling the 'cliffhangers'.
What a guy!! We are blessed to be able to call him husband, Daddy, son, brother, and friend.
So, here we go-please sign his guestbook so that he can have your comforting and happy messages to bring with him to the hospital. Your words are his best medicine.
Keep a happy thought.
Marilyn
Thursday, June 14, 2007
Score: Dave/1st place-Myeloma/2nd place
You gotta love that:-) Dave and Kathy had an appointment with Dr. Anamur today and he said that based on the results of the tests that were taken last week (minus an MRI-which they will do on Monday), it appears that the nasty Myeloma has gone into hiding! The Chemo treatments have knocked it down to a 'dormant' stage. This means that the 'Cancer' ride at the carnival has slowed down a bit!! Woo-Hoo!! It also means that the time has come for Dave to make that decision about whether he should consider the 'Autologous Stem Cell Transplant' ride. Dr. Anamur will be speaking with the doctor at Dana Farber this week to discuss Dave's situation and we will know more next week. Dr. Anamur explained to Dave and Kathy that this would be the best time to do the transplant, given the dormancy of the cancer. But there is an awful lot to think about. If you are interested in reading more about it-click on the link below.
He will be continuing with the Chemo sessions through the summer.
I know I've asked this of all of you so many times, and for good reason, it has worked so far.
So, keep that happy thought, would ya?-and thanks a bunch for it:-)
Marilyn
http://www.multiplemyeloma.org/treatments/3.03.02.php
He will be continuing with the Chemo sessions through the summer.
I know I've asked this of all of you so many times, and for good reason, it has worked so far.
So, keep that happy thought, would ya?-and thanks a bunch for it:-)
Marilyn
http://www.multiplemyeloma.org/treatments/3.03.02.php
Thursday, June 7, 2007
A Little Chit-Chat
I spoke with Dave yesterday and he had some (actually, quite a few) test this week. The Doc's are giving him a complete evaluation, to see where all of his issues are at the moment. He even has to see the dentist! So we should have some results by next weeks end.
Brian Corey took him for an ice cream today! There's some happy news. Thanks Brian, I bet Dave loved that.
Dave takes such good care of himself, in the way of eating all the right stuff, ice cream must have tasted mighty nice.
Let's keep our fingers crossed for good news.
Keep it happy,
Marilyn
Brian Corey took him for an ice cream today! There's some happy news. Thanks Brian, I bet Dave loved that.
Dave takes such good care of himself, in the way of eating all the right stuff, ice cream must have tasted mighty nice.
Let's keep our fingers crossed for good news.
Keep it happy,
Marilyn
Wednesday, June 6, 2007
Thanks a Mil!!!
I would like to take a moment to thank those of you who have signed Dave's Guest Book and encourage those of you who haven't, to please do so. He enjoys reading them over and over. These messages to Dave are just another way that we can help him stay focused on healing, and as I have said before, there is nothing stronger than the Human Connection. The intense energy that comes from caring and loving, is the one thing that we can give him.
I would also like to express my gratitude to all of you for the compliments and support that I have received concerning this Blog. It has been a wonderful way for all of us to communicate.
There is not much change with Dave's medical status at this point. I am going to give him a call or a visit today and will update you if there is any news. What I do know is that the Docs are taking lots of tests this week. (Off Chemo week!) So we should have some answers by weeks end. I know that he is not feeling well in the AM part of the day. Nausea. But he does recover in the afternoon.
During these times when he is not feeling so well, it's nice to know that he has a Book that he can go to and get some encouraging words from friends and family. Or a joke or two. Laughter is still the best medicine, so they tell me!! Giggle
Keep a happy thought.
Marilyn
I would also like to express my gratitude to all of you for the compliments and support that I have received concerning this Blog. It has been a wonderful way for all of us to communicate.
There is not much change with Dave's medical status at this point. I am going to give him a call or a visit today and will update you if there is any news. What I do know is that the Docs are taking lots of tests this week. (Off Chemo week!) So we should have some answers by weeks end. I know that he is not feeling well in the AM part of the day. Nausea. But he does recover in the afternoon.
During these times when he is not feeling so well, it's nice to know that he has a Book that he can go to and get some encouraging words from friends and family. Or a joke or two. Laughter is still the best medicine, so they tell me!! Giggle
Keep a happy thought.
Marilyn
Monday, May 28, 2007
surprise visit!
Last Thursday those of us who lucky enough to be at the Concord jobsite were treated to a surprise visit by our friend Dave.Many thanks to Brian Corey for getting Dave out for a ride to someplace other than the hospital or doctors office.I couldn't believe my ears when i heard his voice.It's been since January that he has been at the job and he was excited to see how the project has come along,even without him.I know he has missed being a part of it but this was the next best thing.He was feeling pretty chipper and looked great!Many thanks to all who make Dave"s days a bit brighter by a phone call or visit.I know he really appreciates the contact and feeling not so isolated.Hope to see you again soon Dave.Baba booey to y'all.Moe
Tuesday, May 22, 2007
A Message from the "Tous Team"
LGH's 8th TeamWalk for CancerCare was a tremendous success and such an amazing community event! The rain didn't dampen the spirits of "Tous Team", whose goal was $1,900 and through the generosity of our wonderful sponsors, raised $3,015!! On behalf of our team, thank you. We'll be
back next year with hopes of growing "Tous Team" and look forward to our dear friend, Dave, to lead us in victory. As Shelagh best put it ... "this feels good". And truly, it does.
-Written by Jane Comeau
back next year with hopes of growing "Tous Team" and look forward to our dear friend, Dave, to lead us in victory. As Shelagh best put it ... "this feels good". And truly, it does.
-Written by Jane Comeau
Thursday, May 17, 2007
Update on the Cancer Care Walk
Our Team Goal
Goal: $1,700.00
Raised: $2,590.00
Help Us Reach Our Goal!
Welcome to our Team Page! We are walking in this year's TeamWalk for CancerCare and need your support. As walkers we are helping to improve the quality of life for cancer patients and their families in the Greater Lowell area. We want to raise the most money as a team and help Lowell General Hospital reach its goal. Please help us! You can sponsor us as a team or as individual members. You can even join our team and help raise money and awareness, too!
THANK YOU TO ALL WHO SUPPORT "TOUS TEAM" and the efforts of LGH in providing passionate care to our friend, Dave Tousignant, and to all who are facing the challenge of this frightening disease. A SPECIAL THANKS to Dave's friends that live far away but hold him close in their heart: Heather and Jack Pyle of Las Vegas, who stay in touch with Dave and his Mom, donated $100 to our team. Lynne Dwight Gow, for many years living in Chicago, wants Dave to know "the Chicago crowd has him in our thoughts and prayers" ($100), and Mike McMahon ($100), long gone from New England, but remembers Dave " as a great guy".
2007 TeamWalk Members
Name Raised
Jane Comeau $1,000.00
Patricia McCafferty $615.00
Patti Britton $125.00
Janet Mitchell $375.00
Marcie Kinney $100.00
Shelagh McNulty $375.00
2007 TeamWalk has 6 Individuals
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Goal: $1,700.00
Raised: $2,590.00
Help Us Reach Our Goal!
Welcome to our Team Page! We are walking in this year's TeamWalk for CancerCare and need your support. As walkers we are helping to improve the quality of life for cancer patients and their families in the Greater Lowell area. We want to raise the most money as a team and help Lowell General Hospital reach its goal. Please help us! You can sponsor us as a team or as individual members. You can even join our team and help raise money and awareness, too!
THANK YOU TO ALL WHO SUPPORT "TOUS TEAM" and the efforts of LGH in providing passionate care to our friend, Dave Tousignant, and to all who are facing the challenge of this frightening disease. A SPECIAL THANKS to Dave's friends that live far away but hold him close in their heart: Heather and Jack Pyle of Las Vegas, who stay in touch with Dave and his Mom, donated $100 to our team. Lynne Dwight Gow, for many years living in Chicago, wants Dave to know "the Chicago crowd has him in our thoughts and prayers" ($100), and Mike McMahon ($100), long gone from New England, but remembers Dave " as a great guy".
2007 TeamWalk Members
Name Raised
Jane Comeau $1,000.00
Patricia McCafferty $615.00
Patti Britton $125.00
Janet Mitchell $375.00
Marcie Kinney $100.00
Shelagh McNulty $375.00
2007 TeamWalk has 6 Individuals
Does this page contain inappropriate content? Report abuse now!
Lowell General Hospital | Privacy Policy | Update Email Preferences
Tuesday, May 15, 2007
It's a Bit of a Mystery
I just spoke with Kathy and all of Dave's test results showed no significant signs of any condition that would have caused his symptoms. The Docs think that it's a combination of all the meds and the fact that he has been exposed to some viruses in the last few weeks. His body has just about had it with all this 'foreign' stuff going into it. He is a tough guy, though, and this was just another hurdle that he jumped. His spirits remain in tact, even when he doesn't feel well.
"The Song Remains the Same" - Keep those happy, healthy thoughts.
Marilyn
"The Song Remains the Same" - Keep those happy, healthy thoughts.
Marilyn
Monday, May 14, 2007
He is Home
All I know at this posting is that Dave did come home on Saturday night. He is feeling okay and when I get more info, I will get it to you. I have only spoken to his Mom, this morning, and she didn't give me a medical update. But she did say that he had a good day yesterday.
When I hear from Kathy, I will fill you all in.
Keep a happy thought.
Marilyn
When I hear from Kathy, I will fill you all in.
Keep a happy thought.
Marilyn
Friday, May 11, 2007
There's a Pothole in the Road
Dave was at home this morning getting ready for his Friday trip to the Cancer Center when he started having a little trouble breathing. Kathy had just left for work, and he called her back home because he felt very bad. He started to have what they both described uncontrollable 'shivers'. They were pretty scared by the ordeal and took him straight to the hospital. The emergency staff went right to work checking blood, taking x-rays, etc. So far they have found nothing that would appear to have caused this strange occurrence. He was quite sick a few days ago with nausea and vomiting, and they thought it was a tummy bug. I saw them about 3 pm today, and at that time they were still thinking some kind of infection, maybe in the port, although they couldn't really find anything. They were treating him with antibiotics, and the plan was for him to stay overnight and get all the results back before going home. Dr. Rick is on call this weekend, which makes Dave and Kathy and Phyllis very comfortable.
There was some unexpected good news from the x-rays that were taken today. He has had no significant change, one way or the other, since the onset of the Myeloma. That perked him up a bit. And he looked great when I saw him. He had gotten his appetite back and was feeling fine physically, but emotionally wondering 'what the heck was that?' We're all hoping that it's nothing more than an infection that can be healed up quickly.
Keep those happy, healthy thoughts!!
Marilyn
Footnote: He was wearing his 'lucky heart' PJ pants. Good sign!
There was some unexpected good news from the x-rays that were taken today. He has had no significant change, one way or the other, since the onset of the Myeloma. That perked him up a bit. And he looked great when I saw him. He had gotten his appetite back and was feeling fine physically, but emotionally wondering 'what the heck was that?' We're all hoping that it's nothing more than an infection that can be healed up quickly.
Keep those happy, healthy thoughts!!
Marilyn
Footnote: He was wearing his 'lucky heart' PJ pants. Good sign!
Wednesday, May 9, 2007
Medical Update
Dave and Kathy had an appointment with Dr. Lapp yesterday and it appears that there will be no more surgery for the time being. All of Dave's Docs have decided that more back surgery is not necessary in the near future. He is going to control any pain that he has with meds and if the meds don't work then they will discuss more surgery. But for the time being, Chemo will continue, which is working on the Myeloma. His numbers are still very good. He is content to be upright and able to do some things around the house, as well as take care of himself. He has a very healthy spirit, one that will not be beaten down at this point. But every day is a different 'carnival ride', sometimes exhilarating and fun (can't wait to get back in line to have another ride), and sometimes a little scary (not going to get back in line for that one!)
So for now, he is continues to eat well, sleep well and stay focused on what's important. Kathy's Mom has gone back home to Arizona to visit her new grandbaby, so Dave is doing a little cooking!! And, of course, he is still chipping away at those 'Thank Yous' to everyone. He remains extremely humbled by all of your attention to his situation.
Keep those happy thoughts.
Marilyn
If you haven't written a friendly message in the Guest Book-please do so. I have been printing them out and putting them into a nice book for him to pick up and look at when the 'ride gets a little scary'. Your friendship really means alot to him.
So for now, he is continues to eat well, sleep well and stay focused on what's important. Kathy's Mom has gone back home to Arizona to visit her new grandbaby, so Dave is doing a little cooking!! And, of course, he is still chipping away at those 'Thank Yous' to everyone. He remains extremely humbled by all of your attention to his situation.
Keep those happy thoughts.
Marilyn
If you haven't written a friendly message in the Guest Book-please do so. I have been printing them out and putting them into a nice book for him to pick up and look at when the 'ride gets a little scary'. Your friendship really means alot to him.
Tuesday, May 8, 2007
The "Tous Team" -Over Their Goal!!
Our Team Goal
Goal: $1,700.00
Raised: $1,870.00
Help Us Reach Our Goal!
Welcome to our Team Page! We are walking in this year's TeamWalk for CancerCare and need your support. As walkers we are helping to improve the quality of life for cancer patients and their families in the Greater Lowell area. We want to raise the most money as a team and help Lowell General Hospital reach its goal. Please help us! You can sponsor us as a team or as individual members. You can even join our team and help raise money and awareness, too!
THANK YOU TO ALL WHO SUPPORT "TOUS TEAM" and the efforts of LGH in providing passionate care to our friend, Dave Tousignant, and to all who are facing the challenge of this frightening disease. A SPECIAL THANKS to Dave's friends that live far away but hold him close in their heart: Heather and Jack Pyle of Las Vegas, who stay in touch with Dave and his Mom, donated $100 to our team. Lynne Dwight Gow, for many years living in Chicago, wants Dave to know "the Chicago crowd has him in our thoughts and prayers" ($100), and Mike McMahon ($100), long gone from New England, but remembers Dave " as a great guy".
2007 TeamWalk Members
Name Raised
Jane Comeau $1,000.00
Patricia McCafferty $320.00
Patti Britton $125.00
Janet Mitchell $0.00
Marcie Kinney $100.00
Shelagh McNulty $325.00
2007 TeamWalk has 6 Individuals
Goal: $1,700.00
Raised: $1,870.00
Help Us Reach Our Goal!
Welcome to our Team Page! We are walking in this year's TeamWalk for CancerCare and need your support. As walkers we are helping to improve the quality of life for cancer patients and their families in the Greater Lowell area. We want to raise the most money as a team and help Lowell General Hospital reach its goal. Please help us! You can sponsor us as a team or as individual members. You can even join our team and help raise money and awareness, too!
THANK YOU TO ALL WHO SUPPORT "TOUS TEAM" and the efforts of LGH in providing passionate care to our friend, Dave Tousignant, and to all who are facing the challenge of this frightening disease. A SPECIAL THANKS to Dave's friends that live far away but hold him close in their heart: Heather and Jack Pyle of Las Vegas, who stay in touch with Dave and his Mom, donated $100 to our team. Lynne Dwight Gow, for many years living in Chicago, wants Dave to know "the Chicago crowd has him in our thoughts and prayers" ($100), and Mike McMahon ($100), long gone from New England, but remembers Dave " as a great guy".
2007 TeamWalk Members
Name Raised
Jane Comeau $1,000.00
Patricia McCafferty $320.00
Patti Britton $125.00
Janet Mitchell $0.00
Marcie Kinney $100.00
Shelagh McNulty $325.00
2007 TeamWalk has 6 Individuals
Tuesday, April 24, 2007
Surgery Notes
Well, surgery went well. Dave stayed overnight in the hospital because surgery was scheduled rather late in the day yesterday. And, as we have proven in the past, we got what we asked for. Dr. Lapp was able to 'see' the vertebrae that has been the nasty little culprit. The cause of most of Dave's pain and the one that helps hold up his head. So, it has been repaired. Woo-Hoo!! Pat yourself on the back if you were one of those praying for good vision for the Doc. What I understand is that he was able to repair about three this time. There is still more to do, but the follow-up visit in 2 weeks, with the Doc, will be the determining factor.
Kathy picked Dave up this morning and she said that he was feeling very upbeat with hardly any pain. So he's on one of the good 'carnival rides' as of this posting-lets hope it lasts a long time.
Don't forget to go to the Lowell General website and sign up to be a walker on the 'Tous Team' or sponsor a walker if you can't make it. The website is listed in the message about the walk from Jane Comeau.
Keep those happy thoughts.
Marilyn
Kathy picked Dave up this morning and she said that he was feeling very upbeat with hardly any pain. So he's on one of the good 'carnival rides' as of this posting-lets hope it lasts a long time.
Don't forget to go to the Lowell General website and sign up to be a walker on the 'Tous Team' or sponsor a walker if you can't make it. The website is listed in the message about the walk from Jane Comeau.
Keep those happy thoughts.
Marilyn
Thursday, April 19, 2007
As Promised-More Info on the LGH Walk
We are now registered as a team, in love and support of our buddy Dave, for the May 20 Lowell General TeamWalk for CancerCare. Please go to www.lowellgeneral.org and click on the "Walk", then scroll to "Sponsor a Walker or Team". We are "Tous Team" and you need to use the quotations. Registration is $10 and you can sign up for either the 3 mile or 6 mile walk. As mentioned previously, send this along to as many people in your address book as possible. Bring your family, friends, co-workers ... we can make this a tremendous event. If you cannot walk, you may want to sponsor one of the team members.
Thanks everyone ... maybe a few of you could jump on this bandwagon with me and we'll figure out our team tshirt. Let's get those walking papers going!
All best,
Jane
jemcomeau@comcast.net
Thanks everyone ... maybe a few of you could jump on this bandwagon with me and we'll figure out our team tshirt. Let's get those walking papers going!
All best,
Jane
jemcomeau@comcast.net
It's a Go!!
Dr. Lapp and Dr. Anamur had a little pow-wow yesterday and they both feel that more kyphoplasty is the answer to Dave's vertebrae issues. So they have scheduled him for surgery on Monday, to shore up 2 of them and then 3 weeks later go in and finish up the rest. Dr. Lapp says that he can only repair what he can see, so let's hope for clear vision that day for the Doc. He seems very optimistic that he can help Dave.
Deciding to have a stem cell transplant is a weighty problem for anyone, in Dave's case, with all of the bone damage, it makes the decision a lot more difficult. Let's hope this back surgery works and gives Dave the peace of mind that he needs to make other decisions about his health.
Thanks everyone, this is proof that your thoughts and prayers are working once again,
Keep it going,
Marilyn
Happy Thoughts Footnote: Dave drove the car the other day!! Woo-Hoo!!!
Deciding to have a stem cell transplant is a weighty problem for anyone, in Dave's case, with all of the bone damage, it makes the decision a lot more difficult. Let's hope this back surgery works and gives Dave the peace of mind that he needs to make other decisions about his health.
Thanks everyone, this is proof that your thoughts and prayers are working once again,
Keep it going,
Marilyn
Happy Thoughts Footnote: Dave drove the car the other day!! Woo-Hoo!!!
Tuesday, April 17, 2007
Dave's Cloud Has Sprung a Leak...
...in the form of a back specialist, Dr. Lapp who says that he can fix up Dave's vertebrae in two operations. He gave Dave and Kathy the ray of sunshine that they needed to hear right about now. This is very good news for Dave. His concerns, up to this point, have been about his back and whether or not the bone damage can be repaired enough to continue to fight the Myeloma. This is the first time that he has felt that there is some hope of bone repair. So, it looks like a go, just when it will happen hasn't been determined, but I will let you know the minute I do.
Think good, happy, healthy thoughts for this boy,
He needs you,
Marilyn
Think good, happy, healthy thoughts for this boy,
He needs you,
Marilyn
Thursday, April 12, 2007
It's a Tough Battle
I had the opportunity to visit with Dave yesterday (I brought him the messages from the Guestbook and pasted them into the book that we had at the Fundraiser that not many of you got to sign). Which brought him great joy, so if you haven't posted your message for Dave in the Guestbook, get crackin'. He needs those 'Happy Thoughts' if we expect him to fight this unpredictable disease.
The news on Tuesday from the Doc was not the best. Dave's vertebrae continue to deteriorate. Which causes him alot of pain. And the Myeloma numbers are not dropping as quickly as the Doc's had hoped. He is in very good spirits, though and he looks great, even with the weight loss. His focus right now is research. He is looking for some answers about the stem cell transplant choice, the bone damage, and overall what to expect from all of this. If any of you have access to information concerning his particular situation; I.E. chat rooms, websites, personal experience with Myeloma in a younger person with bone damage, PLEASE email ME so that I can get it to him. I don't want to overwhelm him with info, so I would prefer it if I could do the preliminary 'weeding'. (Thanks!) Which means that you can send ME anything that you think might help him with his research.
Your support of this Blog speaks milestones about the love and friendship that you have for Dave and Kathy. I want to thank you all again for checking in with us, daily. It means alot to them.
It's time to write down your 'Happy Thoughts'!
Marilyn
The news on Tuesday from the Doc was not the best. Dave's vertebrae continue to deteriorate. Which causes him alot of pain. And the Myeloma numbers are not dropping as quickly as the Doc's had hoped. He is in very good spirits, though and he looks great, even with the weight loss. His focus right now is research. He is looking for some answers about the stem cell transplant choice, the bone damage, and overall what to expect from all of this. If any of you have access to information concerning his particular situation; I.E. chat rooms, websites, personal experience with Myeloma in a younger person with bone damage, PLEASE email ME so that I can get it to him. I don't want to overwhelm him with info, so I would prefer it if I could do the preliminary 'weeding'. (Thanks!) Which means that you can send ME anything that you think might help him with his research.
Your support of this Blog speaks milestones about the love and friendship that you have for Dave and Kathy. I want to thank you all again for checking in with us, daily. It means alot to them.
It's time to write down your 'Happy Thoughts'!
Marilyn
Friday, April 6, 2007
Dana Farber Visit
It sounds like it was a long day. It took them nearly 2 hours to get back home due to weather and traffic. Happily, Linn and Greg were with them. I will do my best to give you the info that I got from Kathy.
The doctor there gave Dave a number of options. First, he can continue Chemo until the Myeloma becomes resistant to it and no longer works. Next, he can have a single or double stem cell transplant (his own stem cells). This would give him a chance to knock the cancer back to an earlier stage. The recuperation period from this is very intense and takes anywhere from 6 months to a year. Lastly, he can have an outside stem cell transplant (someone else's).
So, he has some very difficult decisions to make. No matter what he decides to do, it is going to be a 'day-to-day' scenario. That's what Multiple Myeloma is, a 'day-to-day' disease.
He needs us more than ever, now. Please sign the guestbook on this blog, so that I can make him a book to look at when he needs some strength to get through this. His friends and family are his best emotional medicine. And I believe that there is healing in numbers.
Keep a healthy and happy thought,
Marilyn
The doctor there gave Dave a number of options. First, he can continue Chemo until the Myeloma becomes resistant to it and no longer works. Next, he can have a single or double stem cell transplant (his own stem cells). This would give him a chance to knock the cancer back to an earlier stage. The recuperation period from this is very intense and takes anywhere from 6 months to a year. Lastly, he can have an outside stem cell transplant (someone else's).
So, he has some very difficult decisions to make. No matter what he decides to do, it is going to be a 'day-to-day' scenario. That's what Multiple Myeloma is, a 'day-to-day' disease.
He needs us more than ever, now. Please sign the guestbook on this blog, so that I can make him a book to look at when he needs some strength to get through this. His friends and family are his best emotional medicine. And I believe that there is healing in numbers.
Keep a healthy and happy thought,
Marilyn
Wednesday, April 4, 2007
Please Sign the Guestbook
Okay, I found a guestbook for you all to sign in lieu of not getting to sign the book on Saturday night. So, if you would like to leave a message for Dave to have, click on the icon under the Guestbook. When you get to that site, click on the Post box at the top of the page. Type in your name, your e-mail address (in case we get Dave to use the computer), where you are from and then scroll down to the message area to leave your message. My intent is two-fold. One, to have a 'Happy Thoughts' book for Dave to read on his 'down' days, and two, so that he knows who was at the party and who couldn't make it. This is very, very important. He misses his social interactions with people and these messages will be vital to his emotional health. Please don't let a little thing like the computer frighten you into not posting a message for him. If you hit any barriers trying to leave a message -call me @ 978-433-9262 or e-mail me @ manystrz@yahoo.com and I will talk you through it.
We are a group of people who answer a call for help with the kind of strength and fortitude that you just don't see any where else. I have come to realize that if Dave is going to heal, it is going to be with our help. We've got one of his troubles taken care of for a little while (great job, by the way, pat on the back for everyone!!!). Let's focus on his emotional health for a while and get this book going.
You guys ROCK!!!
Time to write down those Happy Thoughts,
Marilyn
We are a group of people who answer a call for help with the kind of strength and fortitude that you just don't see any where else. I have come to realize that if Dave is going to heal, it is going to be with our help. We've got one of his troubles taken care of for a little while (great job, by the way, pat on the back for everyone!!!). Let's focus on his emotional health for a while and get this book going.
You guys ROCK!!!
Time to write down those Happy Thoughts,
Marilyn
Monday, April 2, 2007
Sunday, April 1, 2007
Well, It Was Quite a Night!!
If you were there, than you know for yourself what a phenomenal turnout we had. There was hardly any elbow room. We estimated the crowd to number over 550 at one time. Friends drove down from Vermont and flew in from Florida and Texas. It was pretty impressive to see a community that has gone off in so many directions, come together for one purpose. The electricians, the plumbers, the builders, the masons, the painters, the wrestlers, the doctors, the lawyers, the Indian Chiefs, the butchers, the bakers and the candlestick makers? came together to give back to Dave all the love and friendship that he has given.
It was 'incredulous'. (There's Dave's word again!) The entertainment was fantastic. The band, the pianist, the singers. There were raffle tickets flying all over, and a live auction. Very cool!! The highlight of the evening, of course, was a pre-recorded message from Kathy and Dave. It was probably the only time that you could hear a pin drop in a room full of people. Kathy did most of the talking, (and she was great!). Dave, being his shy self, said a little thank you at the end. But it was nice for everyone to see him. There was a live feed from the party to his house so that he and Kathy could watch it all take place on TV. Hopefully he got to see some of it. He tires easily and is ususally off to bed early. But it was also recorded so that he can see it later and there were plenty of cameras around. The only thing that got overlooked, unfortunately, was the book for everyone to sign. We did get some people to write messages to Dave who were still there when we realized that it had gotten shuffled to place where no one would find it! So I am going to try to 'up' my computer skills and figure out a way to get a 'Happy Thoughts' book linked to this blog. That way if you didn't get a chance to give him a personal message, you can, and I will see that it gets into his book. I am also going to try to scan in the beautiful program that was made for him, for those of you who couldn't make it. (Which, by the way, we missed you).
The whole night was a major success, in many more ways than we could have imagined. The coming together of a community of people who live in different cubby holes in this world-well to quote another generation- it was mind blowing!
I will be posting more details of the night as the weeks go by. And also updating you all on Dave's visit to Dana Farber this week.
I have to say that in my 53 years of life, I don't recall ever getting a chance to meet so many nice people in so short a period of time. David is truly a blessed man.
Thank you for all of your kindness, generosity, and love. He really does appreciate it.
Keep a happy thought!
Marilyn
It was 'incredulous'. (There's Dave's word again!) The entertainment was fantastic. The band, the pianist, the singers. There were raffle tickets flying all over, and a live auction. Very cool!! The highlight of the evening, of course, was a pre-recorded message from Kathy and Dave. It was probably the only time that you could hear a pin drop in a room full of people. Kathy did most of the talking, (and she was great!). Dave, being his shy self, said a little thank you at the end. But it was nice for everyone to see him. There was a live feed from the party to his house so that he and Kathy could watch it all take place on TV. Hopefully he got to see some of it. He tires easily and is ususally off to bed early. But it was also recorded so that he can see it later and there were plenty of cameras around. The only thing that got overlooked, unfortunately, was the book for everyone to sign. We did get some people to write messages to Dave who were still there when we realized that it had gotten shuffled to place where no one would find it! So I am going to try to 'up' my computer skills and figure out a way to get a 'Happy Thoughts' book linked to this blog. That way if you didn't get a chance to give him a personal message, you can, and I will see that it gets into his book. I am also going to try to scan in the beautiful program that was made for him, for those of you who couldn't make it. (Which, by the way, we missed you).
The whole night was a major success, in many more ways than we could have imagined. The coming together of a community of people who live in different cubby holes in this world-well to quote another generation- it was mind blowing!
I will be posting more details of the night as the weeks go by. And also updating you all on Dave's visit to Dana Farber this week.
I have to say that in my 53 years of life, I don't recall ever getting a chance to meet so many nice people in so short a period of time. David is truly a blessed man.
Thank you for all of your kindness, generosity, and love. He really does appreciate it.
Keep a happy thought!
Marilyn
Thursday, March 29, 2007
DAVE'S FUND RAISER EVENT
It's hard to believe that it is upon us. I have heard many folks saying that this party is going to be the biggest Chelmsford High School Class Reunion ever!-spanning the years of 1965-1975 and then some. 'Incredulous' as Dave would say. Bring your dancing shoes, your appetite and a card for Dave or a message/photo (of yourself or something that you and Dave share)/poem, etc. to put into his 'Happy Thoughts' book, for those days when he needs a 'Happy Thought'.
Raffle tickets are 10 for $20.00 or 50 for $50.00-tons of very cool stuff. And you'll need a competitive edge to bid on the Auction items. Very, very cool stuff!!
There will be disposable cameras around, don't be shy about taking pictures for Dave. He is going to want to see how wonderful you all are.
See you all Saturday night!!
Bring those happy thoughts,
Marilyn
Raffle tickets are 10 for $20.00 or 50 for $50.00-tons of very cool stuff. And you'll need a competitive edge to bid on the Auction items. Very, very cool stuff!!
There will be disposable cameras around, don't be shy about taking pictures for Dave. He is going to want to see how wonderful you all are.
See you all Saturday night!!
Bring those happy thoughts,
Marilyn
Thursday, March 22, 2007
A Nice Visit
I had a very nice visit with Dave yesterday. He was in good spirits, despite his pain. The Chemo treatments are not making him sick or lose his hair and it seems to be knocking the Myeloma numbers down a bit. Hopefully, when the Docs get his cancer to a point, they will be able to address his bone fractures and pain a little more. It is amazing what he has been through in 2 short months.
Your prayers, happy thoughts, and support have helped him with his fight more than you know. He was afraid that he would not be able to properly thank everyone for all the comfort that he has gotten from friends and family. So, we decided that he should have some special cards that he could use.
Dave and Moe did the finish work for a very nice family, Mark & Marcia Thomas and their very talented daughter, Jenn. She has a unique artistic talent that we were sure would be the perfect solution to Dave and Kathy's dilemma. Thank you Mark, Marcia and Jenn for creating these special cards for Dave and Kathy. They are fantastic.
See you all soon,
Keep those happy thoughts,
Marilyn
Your prayers, happy thoughts, and support have helped him with his fight more than you know. He was afraid that he would not be able to properly thank everyone for all the comfort that he has gotten from friends and family. So, we decided that he should have some special cards that he could use.
Dave and Moe did the finish work for a very nice family, Mark & Marcia Thomas and their very talented daughter, Jenn. She has a unique artistic talent that we were sure would be the perfect solution to Dave and Kathy's dilemma. Thank you Mark, Marcia and Jenn for creating these special cards for Dave and Kathy. They are fantastic.
See you all soon,
Keep those happy thoughts,
Marilyn
Saturday, March 17, 2007
We Have Our Easels, Just Need Flowers
Thanks everyone, we got the two easels we were looking for. Everything seems to be falling into place. We are still looking for Florists who would like to donate one, two, or three table decorations. We thought that it might be a great opportunity to advertise their artistic ability and supply us with some very different, very lovely table decos. Not to mention the fact that it is a healthy competition for local florists. Tax-deductible, because it is marketing/advertising. Let me know if you know anyone willing to donate.
Thanks again for all of your participation. It's going to be a great night.
Keep a happy thought!
Marilyn
Thanks again for all of your participation. It's going to be a great night.
Keep a happy thought!
Marilyn
Tuesday, March 13, 2007
One Day At A Time
I just received the medical updates that we have all been waiting for. Dave and Kathy had an appointment with Dr. Anamur today and he said that Dave's numbers, (in relation to the Multiple Myeloma), look better than they did, but they also discussed the facts. The facts are that Multiple Myeloma is a cancer that is unpredictable. He will have good days and he will have bad days, and the quality of his life, day to day, is what is important. He is doing well with the Chemo treatments and Dr. Anamur explained that Chemo could be one of his options for quite a while. They also discussed a bone marrow transplant (or Stem Cell Transplant.) They have an appointment with a doctor at Dana Farber upcoming in a few weeks to discuss this option. The procedure, as described to Dave and Kathy, has left them with some concerns. He is still in pain from the bone damage as a result of the Myeloma. It's optimistic to hope for total bone repair, although it is possible to have some strengthening in certain areas. Time and medicine will be the predictor of that. Doctors orders are no strenuous physical activity. Short walks is about all.
Dave has come to realize that this journey he is on will be the ultimate test of his endurance. At the same time, it will be a journey of change, hope, faith and human connection. His focus in life has to be a little different now.
Part of his 'good health' right now is the fact that we have all been so good about not exposing him to germs. (Pat on the back for us.) And if he is going to have to continue Chemo, that won't be changing for a while.
Keep your happy, healthy thought,
You are all a special part of his connection,
Marilyn
Dave has come to realize that this journey he is on will be the ultimate test of his endurance. At the same time, it will be a journey of change, hope, faith and human connection. His focus in life has to be a little different now.
Part of his 'good health' right now is the fact that we have all been so good about not exposing him to germs. (Pat on the back for us.) And if he is going to have to continue Chemo, that won't be changing for a while.
Keep your happy, healthy thought,
You are all a special part of his connection,
Marilyn
Another Fund Raiser Update!!
We want to take this time to thank everyone for their generous support with the many monetary and gift donations that we have received to date. These items donated by dozens of generous businesses and individuals will be used for an auction and raffles the night of the event. Here are some of the wonderful gifts that have been donated:
• Red Sox, Patriots, Celtics and Bruins Tickets
• Weekend getaway at Camden Yards in Baltimore
• A 7 day vacation on Nantucket Island in Massachusetts
• A 7 day vacation in Ocean City, Maryland
• Top of the line golf equipment along with t time at several outstanding golf courses
• Numerous gift certificates for local restaurants, hair salons and spas
• Theatre tickets
We are continuing to accept as many gifts as we can to use in our raffles and auction.
All of the evening’s entertainment will be live, headlined by one of New England’s top entertaining groups, Jack Knox and the Continentals.
Please invite your friends and family to come and enjoy a very special night.
Sincerely,
The Fund Raising Committee
• Red Sox, Patriots, Celtics and Bruins Tickets
• Weekend getaway at Camden Yards in Baltimore
• A 7 day vacation on Nantucket Island in Massachusetts
• A 7 day vacation in Ocean City, Maryland
• Top of the line golf equipment along with t time at several outstanding golf courses
• Numerous gift certificates for local restaurants, hair salons and spas
• Theatre tickets
We are continuing to accept as many gifts as we can to use in our raffles and auction.
All of the evening’s entertainment will be live, headlined by one of New England’s top entertaining groups, Jack Knox and the Continentals.
Please invite your friends and family to come and enjoy a very special night.
Sincerely,
The Fund Raising Committee
Monday, March 12, 2007
Just a Quickie
Well I spoke with David this morning and he was feeling really great. It's nice when his pain is tolerable. And today was one of those days. Hallelujah!! Tomorrow, he and Kathy meet with Dr. Anamur, so we should have some news tomorrow night. Stay tuned.
A little something else that came to mind today, if you were kind enough to donate to the account over these past few weeks, you might want to check with your employer. Some companies have 'Gift Matching Programs'. I will give you whatever you need in the way of proof of your donation. Just let me know. That would be terrific.
Stay warm, (yeah!-not so hard to do today)
Keep a healthy thought,
Marilyn
A little something else that came to mind today, if you were kind enough to donate to the account over these past few weeks, you might want to check with your employer. Some companies have 'Gift Matching Programs'. I will give you whatever you need in the way of proof of your donation. Just let me know. That would be terrific.
Stay warm, (yeah!-not so hard to do today)
Keep a healthy thought,
Marilyn
Friday, March 9, 2007
A Tidbit of News
Gee, I do believe that this is the longest amount of time that I have not communicated any news about our friend. And it's mainly because there isn't too much to tell. Tuesday he went to the Cancer Center and had his catheter taken out and a Chemo port put in. Which does mean that Chemo isn't over yet. He also had some x-rays and some blood tests done. I have been waiting on the results of some of those tests to update you on his progress and as of today, he hasn't heard too much. His Mom took him in to have a Procrit injection today, and one of the nurses told them that 'his numbers' look pretty good. So, there must be some results to share that he will get from Dr. Anamur next Tuesday when he and Kathy go in. He is still in some pain and is starting to ask more questions regarding that. Hopefully, the Docs can come up with some answers. If you know Dave, you know that he doesn't want to take the 'pain meds'. But when he does, he is 'wicked' funny all drugged up. What a hoot!!
He is, for the most part, trying to stay positive. Some days are harder than others. I believe that he is still exercising a little bit though. I know that he misses his social interactions with everyone, but it is hard to know if it's okay to call. He does take 'naps'. Moe called him the other day to chat about work and he really did enjoy it.
I hope we can all get together on March 31st and create the 'human connection' that has helped him through this healing process and that he misses so much. Bobbie and friends are getting a 'live video feed' together so that Dave can join us via technology. It's destined to be a great night.
Keep a happy thought,
Marilyn
He is, for the most part, trying to stay positive. Some days are harder than others. I believe that he is still exercising a little bit though. I know that he misses his social interactions with everyone, but it is hard to know if it's okay to call. He does take 'naps'. Moe called him the other day to chat about work and he really did enjoy it.
I hope we can all get together on March 31st and create the 'human connection' that has helped him through this healing process and that he misses so much. Bobbie and friends are getting a 'live video feed' together so that Dave can join us via technology. It's destined to be a great night.
Keep a happy thought,
Marilyn
Sunday, March 4, 2007
Fund Raiser Update!!
Hi everyone. Bobby and committee has asked me to let you all know that we are still in need of some raffle items. Preferably gift certificates to restaurants, salons, specialty shops, etc. If you or anyone you know, can help us out with these types of items for the event, we would be very grateful. You can contact Bobbie Kinney at 978.251.7804 and let him know what you have. We are, also, looking for Corporate Sponsors for the event. If this is a way that you would like to help out, please contact me at 978.433.9262 or Bobbie. Thanks again for all of your support for Dave and his family. It's overwhelming what nice friends and family Dave has had 'the pleasure to have known' (It's in a Beatles song, I think). (Penny Lane??)
I have not much to update on his medical status at the moment. Moe went over there today, and he said that Dave was having a 'not so good' day. He was not feeling well, which is to be expected with the Chemo. He will have a week or so to recup before they go at it again. Let's hope that he can build himself up a little. I will hopefully be able to fill you in a bit more next week after he has his tests and x-rays. I'm still rooting for our team!!
One other little tidbit of interest, I found out today that if you are looking at the blog, you will see 2 ads on the left hand side, clicking on them does generate some money for our cause. So if there is anything of interest to you, click away. But what I learned just today is that if you click on a particular 'blog post', you will get a whole new set of ads. Didn't know this until I had to edit a post. So, there are other interesting ads hidden in each post. Happy hunting, and clicking! (I was a little surprised at how much they do pay.) And again, please let me know if you see anything objectionable, I will take care of that right away.
Let's keep a healthy thought along with our happy one, shall we.
Gracias
Marilyn
I have not much to update on his medical status at the moment. Moe went over there today, and he said that Dave was having a 'not so good' day. He was not feeling well, which is to be expected with the Chemo. He will have a week or so to recup before they go at it again. Let's hope that he can build himself up a little. I will hopefully be able to fill you in a bit more next week after he has his tests and x-rays. I'm still rooting for our team!!
One other little tidbit of interest, I found out today that if you are looking at the blog, you will see 2 ads on the left hand side, clicking on them does generate some money for our cause. So if there is anything of interest to you, click away. But what I learned just today is that if you click on a particular 'blog post', you will get a whole new set of ads. Didn't know this until I had to edit a post. So, there are other interesting ads hidden in each post. Happy hunting, and clicking! (I was a little surprised at how much they do pay.) And again, please let me know if you see anything objectionable, I will take care of that right away.
Let's keep a healthy thought along with our happy one, shall we.
Gracias
Marilyn
Friday, March 2, 2007
We Have Weight Gain
Dave just seems to be speeding through this recovery process. He has already gained 3 pounds. That is fantastic since he is still doing the Chemo. Which today was the last for a week or so. Next week they will be removing the catheter and inserting a Chemo port, which indicates that the Chemo isn't done yet. They will be in the hospital for the entire day on Tuesday, between the surgery for the port, blood tests and x-rays. Lets all 'huddle' for good results there. Dave is fighting so hard to get better, I hope that he gets some good news medically. Kathy said that his appetite has improved alot and he is really getting around well. So far, it's all good!!!
Thanks to all of you who have supported our efforts with the Fund Raiser, so far. Things are looking good there as well. If someone doesn't get in touch with you, and you would like to buy tickets, contact one of us on the letter in this blog. (Scroll down).
Can't wait to see you all.
Keep a happy thought!
Marilyn
Thanks to all of you who have supported our efforts with the Fund Raiser, so far. Things are looking good there as well. If someone doesn't get in touch with you, and you would like to buy tickets, contact one of us on the letter in this blog. (Scroll down).
Can't wait to see you all.
Keep a happy thought!
Marilyn
Wednesday, February 28, 2007
It's Starting to Have the Earmarks of a Miracle
Seriously, David is doing so great! He made himself an omelet today and walked around the house without the walker, at times. I heard that when Tyler woke up this morning, he thought that he was still dreaming because he saw Dave walking without the walker. Is this not great news? He also called Moe today to talk 'shop'. He wanted to know everything that was going on at work. They laughed and talked. It was a good thing to see (and hear).
He hasn't gotten sick from the Chemo yet. He has one more on Friday for this round and then he gets a week or so off before they start the next round. His appetite is back to normal. Kathy said that the Docs are liking the numbers that they are seeing, and we will have more blood test results next week.
It's pretty amazing how our friend has faired through this last month.
Hooray for Dave!!
Keep smiling!
Marilyn
He hasn't gotten sick from the Chemo yet. He has one more on Friday for this round and then he gets a week or so off before they start the next round. His appetite is back to normal. Kathy said that the Docs are liking the numbers that they are seeing, and we will have more blood test results next week.
It's pretty amazing how our friend has faired through this last month.
Hooray for Dave!!
Keep smiling!
Marilyn
Tuesday, February 27, 2007
One Month Ago Yesterday
Well it was just one month ago yesterday that David got the terrible news and was admitted to the hospital for the worst ride of his life. For 3 weeks he managed to keep his head above the medical waters, fighting Multiple Myeloma, back spasms and pain associated with the compression fractures in his vertebrae, kidney failure due to the level of protein passing through them from the cancer, dehydration, thrush, and a whole host of other symtoms from the medicine that he was on. And now he is home, and he is doing pretty good. There were a few times when we all thought it wasn't gonna happen. But it did.
His physical therapist said yesterday that he has made remarkable strides towards being able to get around a little better. This is all very good progress. He uses a walker, but does go up and down the stairs at his house with Kathy's assistance.
He had number 3 of 4 Chemo treatments today. I haven't yet heard how it went, but I am guessing well.
I am sure that all of you should keep him in your thoughts and prayers, because it's obviously working.
Keep those good thoughts for him,
Marilyn
His physical therapist said yesterday that he has made remarkable strides towards being able to get around a little better. This is all very good progress. He uses a walker, but does go up and down the stairs at his house with Kathy's assistance.
He had number 3 of 4 Chemo treatments today. I haven't yet heard how it went, but I am guessing well.
I am sure that all of you should keep him in your thoughts and prayers, because it's obviously working.
Keep those good thoughts for him,
Marilyn
Monday, February 26, 2007
Tickets are Ready

The tickets for the Fund Raiser have been printed and are being sold by the people that are named in the letter, and some others. I am going to reprint the letter so that you won't have to scroll down to have a look. You will need to click on the letter or the heading to make it large enough to read. Please e-mail or call one of us if you don't get hooked up with tickets and want them. We will be happy to accommodate you.
I have said this before and I will say it again and again, thanks for all of your support, spiritually and financially. We could not have done any of this for Dave and Kathy if it weren't for all of you. Now lets get ready to party, and celebrate Dave's progress!! It is going to be a great night!!
Keep those happy thoughts,
Marilyn
Saturday, February 24, 2007
Beat, But Not Beaten
Moe and I had a little visit with Dave and Kathy tonight. We had some things to deliver to them. We had to keep our distance, as Dave is still very vulnerable. He looks terrific!! He was sitting on the sofa, not in his LITTLE RED HEART PJ BOTTOMS, much to my dismay, but dressed and looking pretty normal for someone who has been through medical hell and back. He gets very tired, but he sleeps and sleeps pretty comfortably in his own bed. It was really nice to sit and visit with them in their own home.
I have had such a great response to this blog that I have decided to put 'Adsense' on it. I believe what that means is that there will be ads, related to the subject matter on this blog, and if you visit and click on any of the ads, money will go into Dave's account. I don't know how much, but when I get an idea I will let you all know if it is worth it or not.
So if you see any ads that interest you, please click on them with no obligation. If you find any that are distasteful or are obligatory let me know and I will get rid of them.
Keep those happy thoughts!
Marilyn
I have had such a great response to this blog that I have decided to put 'Adsense' on it. I believe what that means is that there will be ads, related to the subject matter on this blog, and if you visit and click on any of the ads, money will go into Dave's account. I don't know how much, but when I get an idea I will let you all know if it is worth it or not.
So if you see any ads that interest you, please click on them with no obligation. If you find any that are distasteful or are obligatory let me know and I will get rid of them.
Keep those happy thoughts!
Marilyn
Friday, February 23, 2007
He's Lost the Johnnie!!
Word has it that Dave has tossed the hospital johnnie (where did that word come from?) and traded up for a nice crisp white button down shirt and a comfy pair of PJ bottoms with LITTLE RED HEARTS!! I wonder where they came from. Thanks for that little tidbit of news, Kathy. It was just what we needed to hear.
Today was the 2nd Chemo, and although he is very tired and the ride was a little bumpy. he did do alright. Kathy says that Dave is going up and down the stairs a couple of times a day. That is really great progress. His immune system still remains compromised, and he is still very susceptible to any germs. If we have a winter cold, he'll get pneumonia. So visiting is still not really an option at the moment. Hopefully he will get stronger in the coming weeks. And then we can see him in his LITTLE RED HEART PJ BOTTOMS, hopefully!! giggle!!
I am not sure when he will have a blood test next to see where the Myeloma is (or isn't preferably), but as soon as I hear I will let you know.
This I do know, and that is Dave is very happy to be home, to be able to sit on his own sofa and look around at all of the nice woodworking that he did there. He is happy to be able to have 'his' oatmeal, and his chicken sandwiches in his kitchen, and he is very happy to be able to sleep in his own bed with his darling, Kathy.
We all really do take the little things for granted, don't we.
Enjoy your coffee in the morning, in your own little kitchen, in your own little cubby hole on this earth. It is more important to you than you think.
Keep those happy thoughts-that's what helped Dave heal.
Marilyn
Today was the 2nd Chemo, and although he is very tired and the ride was a little bumpy. he did do alright. Kathy says that Dave is going up and down the stairs a couple of times a day. That is really great progress. His immune system still remains compromised, and he is still very susceptible to any germs. If we have a winter cold, he'll get pneumonia. So visiting is still not really an option at the moment. Hopefully he will get stronger in the coming weeks. And then we can see him in his LITTLE RED HEART PJ BOTTOMS, hopefully!! giggle!!
I am not sure when he will have a blood test next to see where the Myeloma is (or isn't preferably), but as soon as I hear I will let you know.
This I do know, and that is Dave is very happy to be home, to be able to sit on his own sofa and look around at all of the nice woodworking that he did there. He is happy to be able to have 'his' oatmeal, and his chicken sandwiches in his kitchen, and he is very happy to be able to sleep in his own bed with his darling, Kathy.
We all really do take the little things for granted, don't we.
Enjoy your coffee in the morning, in your own little kitchen, in your own little cubby hole on this earth. It is more important to you than you think.
Keep those happy thoughts-that's what helped Dave heal.
Marilyn
Thursday, February 22, 2007
A Message from Brother, Ray
I would like to thank all of the people involved in helping my brother Dave
through this very difficult time in his and our lives. All I can say is WOW!!!!
to all of the friends we have had going way back to our teenage lives.
Dave has amassed a huge amount of what I call very, very good friends over
the past 54 years and it has showed over the last three weeks.
It comes from Dave being the person he is today, loving, friendly and
compassionate about life and the people who get the privilege of being around him.
I was worried about how we would take care of him over the next few months
with him not being in work and I even considered moving back to Mass to help out.
But all of you have overwhelmed us all with your love, support and
kindness...Thank you from the bottom of our hearts for your love and
support. I don't know how to thank you enough.
Love Ray T
through this very difficult time in his and our lives. All I can say is WOW!!!!
to all of the friends we have had going way back to our teenage lives.
Dave has amassed a huge amount of what I call very, very good friends over
the past 54 years and it has showed over the last three weeks.
It comes from Dave being the person he is today, loving, friendly and
compassionate about life and the people who get the privilege of being around him.
I was worried about how we would take care of him over the next few months
with him not being in work and I even considered moving back to Mass to help out.
But all of you have overwhelmed us all with your love, support and
kindness...Thank you from the bottom of our hearts for your love and
support. I don't know how to thank you enough.
Love Ray T
Tyler's First Report
Dave is finally home as of Wednesday night 2/22 after 3 or 4 weeks in the hospital!
There was just something big missing around here at home without him and its great to have him back.
All of the people who were able to come in and see him while he was in the hospital will be pleased to know that he is looking and functioning a LOT better at this point than when you may have seen him. He has lost some weight and has gone through an indescribable amount of pain but that was obviously expected given the nature of the cancer and its fast growth. I personally had surgery on my teeth last week and lost literally 8-10 pounds from not being able to eat, and that isn’t an exaggeration. Dave reported in at only 15-20 pounds lighter than his original weight, which in my opinion is miraculous and should be considered a medical miracle given the strength and fast progress of the disease.
After doing a fair amount of research on the cancer as well as people in his position with this particular disease and harsh early symptoms honestly lead me to believe that he may have been confined to a hospital bed for the rest of his life. This is not an understatement by any means. HOWEVER, after seeing him today walking around freely (with his walker) and being able to accomplish things that seemed so far away and even out of the question a week or two ago are VERY big steps in little time. It seems (and we all hope) that things may only get more positive from here, kemo and treatments can be hard and the pain that he is going through may be indescribable, but if he was able to get through this first bad wave then I would not be surprised if the road is mostly up from here.
Dave is a strong man and a great guy and I am not surprised whatsoever to see the help and support that all his friends and family have been giving him. The road to a recovery will be a harsh one for him it seems that it will be very possible. Dave is strong in heart, in mind, and in physical strength and I can say if anyone is to get through this it would have to be him.
Of course I cannot give a complex medical opinion on the situation, but I can report in on what I see with my own eyes and hear from him and my mother. It was a great surprise to hear that he would be able to come home so soon and function like he is currently. I hope this post has brought some comfort to everyone.
Marilyn, I have not met you, however I just wanted to send my personal thanks to you regarding the whole situation and this blog. You really have no clue how many people have been here to read this. People that I haven’t talked to in years have even been on it, quite literally checking it daily. Please keep up the good work.
-Tyler
There was just something big missing around here at home without him and its great to have him back.
All of the people who were able to come in and see him while he was in the hospital will be pleased to know that he is looking and functioning a LOT better at this point than when you may have seen him. He has lost some weight and has gone through an indescribable amount of pain but that was obviously expected given the nature of the cancer and its fast growth. I personally had surgery on my teeth last week and lost literally 8-10 pounds from not being able to eat, and that isn’t an exaggeration. Dave reported in at only 15-20 pounds lighter than his original weight, which in my opinion is miraculous and should be considered a medical miracle given the strength and fast progress of the disease.
After doing a fair amount of research on the cancer as well as people in his position with this particular disease and harsh early symptoms honestly lead me to believe that he may have been confined to a hospital bed for the rest of his life. This is not an understatement by any means. HOWEVER, after seeing him today walking around freely (with his walker) and being able to accomplish things that seemed so far away and even out of the question a week or two ago are VERY big steps in little time. It seems (and we all hope) that things may only get more positive from here, kemo and treatments can be hard and the pain that he is going through may be indescribable, but if he was able to get through this first bad wave then I would not be surprised if the road is mostly up from here.
Dave is a strong man and a great guy and I am not surprised whatsoever to see the help and support that all his friends and family have been giving him. The road to a recovery will be a harsh one for him it seems that it will be very possible. Dave is strong in heart, in mind, and in physical strength and I can say if anyone is to get through this it would have to be him.
Of course I cannot give a complex medical opinion on the situation, but I can report in on what I see with my own eyes and hear from him and my mother. It was a great surprise to hear that he would be able to come home so soon and function like he is currently. I hope this post has brought some comfort to everyone.
Marilyn, I have not met you, however I just wanted to send my personal thanks to you regarding the whole situation and this blog. You really have no clue how many people have been here to read this. People that I haven’t talked to in years have even been on it, quite literally checking it daily. Please keep up the good work.
-Tyler
Going Home Status
Kathy's oldest son, Tyler, has agreed to keep us updated on Dave's progress at home. He is quite a poignant writer, as you can see from the above message. I look forward to reading his messages. Thanks, Tyler!!
Keep a happy thought,
Marilyn
Keep a happy thought,
Marilyn
Wednesday, February 21, 2007
Home, Sweet, Home
It is with a very happy heart that I get to tell you all that Dave has been cleared by all of his doctors to go home. He and Kathy are so very excited. He has made some incredible strides in the last few days. Today he walked up and down the stairs at the hospital. He doesn't appear to be having any adverse effects from the Chemo at the moment. He will still need to go back to the Cancer Center for blood work and for Chemo, but the rest of what he has to do to get well, he can do at home. This is terrific news for him and his family. We still need to remember that his immune system is compromised and he shouldn't be around any germs.
I will let you know how he is doing at home, when I get some info. It is probably going to be a little hectic for them at first.
It is truly amazing how much progress Dave has made, considering how very sick he was. As he would say, 'incredulous', only this time, it's something good!!
Keep those happy thoughts,
Marilyn
I will let you know how he is doing at home, when I get some info. It is probably going to be a little hectic for them at first.
It is truly amazing how much progress Dave has made, considering how very sick he was. As he would say, 'incredulous', only this time, it's something good!!
Keep those happy thoughts,
Marilyn
Tuesday, February 20, 2007
Chemo, 2nd Round, First Day
And he blew through it. His Mom reporting that he ate like a 'little piggy' all day. And he got up and walked around (with help, he's not Superman yet!). And as much as he would like it, still no visitors, until the Chemo is done. The immune system takes a real beating. So again the Docs are talking about sending him downstairs to rehab. He is extremely determined to get back to being a lot more physical. He and Kathy(his #1 Angel) have been really working hard on the 'getting out of bed' routine. The Docs are pleased. So, we will see where the Myeloma is after 3 more treatments of Chemo over the next 12 days.
His pain seems to be a little more tolerable, sometimes. And aside from the 'cranberry' colored rash all over his entire body, he is having a streak of pretty good days. They thought it was a reaction to a pain medication, now they are thinking that it is actually a fungus that his system couldn't fight off.
It has been really hard to describe what this guy has gone through over the past few weeks. He often referred to this ordeal as 'incredulous'. There were times when we wondered if we would ever see him eating or smiling again. For me, the smile on his face, is my prayer answered. (And watching him woof down some food didn't hurt either.)
I would like to, in a few weeks from now, be able to post the score of: MYELOMA-0, DAVE-1
Keep rooting for our team!
Marilyn
His pain seems to be a little more tolerable, sometimes. And aside from the 'cranberry' colored rash all over his entire body, he is having a streak of pretty good days. They thought it was a reaction to a pain medication, now they are thinking that it is actually a fungus that his system couldn't fight off.
It has been really hard to describe what this guy has gone through over the past few weeks. He often referred to this ordeal as 'incredulous'. There were times when we wondered if we would ever see him eating or smiling again. For me, the smile on his face, is my prayer answered. (And watching him woof down some food didn't hurt either.)
I would like to, in a few weeks from now, be able to post the score of: MYELOMA-0, DAVE-1
Keep rooting for our team!
Marilyn
Monday, February 19, 2007
A Message of Thanks and Appreciation from the Dave Tousignant Family
There are no words that we can offer to adequately express the positive impact that each and everyone's support has given Dave and his family in this time of crisis. Everyone's consideration and caring has shed positive light on an otherwise extremely difficult, sad time and has proved that love, caring and friendship is truly a powerful medicine for all concerned. Dave's personal response to your support is perhaps the best way to convey our appreciation to everyone. When Dave learned of this website and of the assistance that everyone has given him and his family, he immediately became extremely emotional, began to cry and expressed his concern about how and when he could repay each and every one of you. You see, Dave has lived his life enjoying his family and enjoying the pleasure of helping and giving to others. Now his role is reversed and he finds it very difficult to be receiving instead of giving. Dave is deeply touched, beyond description, with each and everyone's response to his situation, and further expressed that a mere thank you is not enough to express his gratitude. Your generosity and consideration has made a huge difference and has lifted Dave's spirits.
Thank God for Family and Friends,
God bless you all
Dave and family
*Written by Dave's brother-in-law, Greg.
Thank God for Family and Friends,
God bless you all
Dave and family
*Written by Dave's brother-in-law, Greg.
Sunday, February 18, 2007
Saturday Dawns
As Saturday dawned, we saw the Dave that we all know and love, except for the hideous red rash all over his body from a pain medication! He looks quite funny. But, what a difference in him. He is alert, coherent, eating, making his own decisions about meds, therapy, etc. It was nice to see. He is still in bed, of course, he has a long way to go still with the physical therapy, but things looked very positive Saturday. He has decided, however, to delay the Kyphoplasty on the last 3 fractured vertebrae. It was originally scheduled for Sunday. He has had some pain relief from Thursdays procedure. My guess is that he would like to enjoy a few days of comfort before going through this again. (Post surgery, on Friday, was not very comfortable for him.)
He is still in danger of catching germs, so the 'no visiting' rule is still in effect. As soon as that changes, I will let you know. He starts another round of Chemo on Tuesday, so it probably won't change for a while.
His progress has been so up and down, that it is even hard for the Docs to predict. The Dave that I saw on Saturday, is the 'mighty Dave' that is going to get his butt up and get himself home. He is very determined about that.
His life has changed, obviously, and some of the things that he used to be able to do are no longer possible, but he does have, at this moment, a life to look forward to.
As his friends and family, we need to continue with the support that we have been giving him, spiritually and financially. That's what he needs from us.
Dave and Kathy have asked me to thank you all many, many times. They are just so grateful for each and every one of you. And I am sure that when they get through the rough chapter, they will be contacting you personally.
But, I, too, would like to thank you all for your feedback on the blog, and your correspondence with me through e-mail, phone, etc. It has been a pleasure for me to meet some of Dave and Kathy's friends and family members.
I will update you this evening.
Keep those happy thoughts,
Snuggle often
Marilyn
He is still in danger of catching germs, so the 'no visiting' rule is still in effect. As soon as that changes, I will let you know. He starts another round of Chemo on Tuesday, so it probably won't change for a while.
His progress has been so up and down, that it is even hard for the Docs to predict. The Dave that I saw on Saturday, is the 'mighty Dave' that is going to get his butt up and get himself home. He is very determined about that.
His life has changed, obviously, and some of the things that he used to be able to do are no longer possible, but he does have, at this moment, a life to look forward to.
As his friends and family, we need to continue with the support that we have been giving him, spiritually and financially. That's what he needs from us.
Dave and Kathy have asked me to thank you all many, many times. They are just so grateful for each and every one of you. And I am sure that when they get through the rough chapter, they will be contacting you personally.
But, I, too, would like to thank you all for your feedback on the blog, and your correspondence with me through e-mail, phone, etc. It has been a pleasure for me to meet some of Dave and Kathy's friends and family members.
I will update you this evening.
Keep those happy thoughts,
Snuggle often
Marilyn
Friday, February 16, 2007
Dave is Very Grateful
I just got off the phone with Kathy, at the hospital, who put Dave on the phone to talk to me. the two of them have had alot of time to talk about things and today she told him about the account and the blog that were set up. Through his tears, he asked me to let you all know how appreciative he is for all of the spiritual and financial support that you have given to him and his family. He had no idea how many of you have been involved in his ongoing medical struggle, and he was simply overwhelmed with gratitude when he found out. We have not been discussing these things with him up to this point because we wanted him to focus on the healing process.
So, when you lay your head on your pillow tonight, after you say your prayer for Dave, give yourself a very big hug from him. He wants you all to have one.
Keep a good thought.
Marilyn
So, when you lay your head on your pillow tonight, after you say your prayer for Dave, give yourself a very big hug from him. He wants you all to have one.
Keep a good thought.
Marilyn
Thursday, February 15, 2007
Strawberry Ice Cream
All is well, so far. Dave went into surgery at about 2:15pm and returned back to his room around 7:30/8:00. Kathy said that he was doing great and the procedure went as planned. They have repaired 3 of the 6 fractures and the next few days will hopefully be a little more pain-free for him. Depending on the outcome here, they will go in on Sunday and repair the other 3. But things look very good and Dave was enjoying a big bowl of Strawberry Ice Cream while I was on the phone with Kathy. He was under the influence of quite the 'cocktail' of drugs, so she said he was also a bit of a comedian.
For those of us who have spent any time with him during the administration of a myriad of pain killers, we know what a clown he can be.
Jumped another hurdle. Woo-Hoo!!
Keep a happy thought!
Marilyn
For those of us who have spent any time with him during the administration of a myriad of pain killers, we know what a clown he can be.
Jumped another hurdle. Woo-Hoo!!
Keep a happy thought!
Marilyn
Wednesday, February 14, 2007
Some Good Stuff!
This is encouraging news, actually. Dr. Anamur, the oncologist, and Dr. Johnson, the spinal surgeon, have concurred that David would benefit from more Kyphoplasty. From what I understand, Kyphoplasty is a 'mending' of fractures with some type of plastic substance that goes in as a liquid and hardens. Please look it up on-line and feel free to edit this post if you find that another explanation is more efficient. Since they have ruled out other reasons why he is in so much pain, they feel that the compression fractures in his spine must be the culprit and they feel that he is strong enough to undergo this type of treatment. Surgery is scheduled for tomorrow afternoon, at which time they will attempt to repair 3 of the 6 fractured vertebrae. The plan is to repeat this procedure on Sunday to repair the other 3. They are hoping that this will get his pain under control so that he can focus on getting stronger.
To those of you who joined me in the "HOPE" club today, thanks, this is what we were hoping for.
Till the next update. Stay warm, snuggle often, and keep a happy thought!!
Marilyn
To those of you who joined me in the "HOPE" club today, thanks, this is what we were hoping for.
Till the next update. Stay warm, snuggle often, and keep a happy thought!!
Marilyn
Valentines Day Update
I just spoke with Kathy and the x-rays that were taken yesterday showed no blockage and no infection. That is some good news. Dave is still in alot of pain, though, and the Docs are not really sure why. He is resting as comfortably as possible, with Kathy by his side.
If I hear any more, I will update the Blog ASAP. For right now, we are hoping for some more good news.
Keep a good thought,
Marilyn
If I hear any more, I will update the Blog ASAP. For right now, we are hoping for some more good news.
Keep a good thought,
Marilyn
Tuesday, February 13, 2007
It's Day to Day
It pains me to be writing this, but our friend has taken a turn for the worse today. His night was not the best and the day has turned out to be even worse. The Docs are doing their best to figue out what is wrong, they are looking at a possible blockage or an infection. These next 48 hours are very crucial. They have listed him in critial condition, although have not moved him to ICU. Kathy asked if I would update you all because besides your prayers we need your help. He can have absolutely NO VISITORS for the time being. The Chemo has wiped out his immune system and the littlest germ can cause horrific consequences. The only people that will be allowed to stay with him are his Mom, Phyllis and of course, his wife, Kathy.
He has, up to this point, loved having company. It always seemed to ignite something inside of him. We all just need to give him the time he needs to heal, for right now.
I knew when I started this blog to update you all that there might be times when I had to deliver 'bad' news. This is one of those times. He really needs the strength of his friends and family right now to get him through this tough time. He has a very tough, but gentle, spirit that keeps his head above the water.
Please pass this message along to everyone you know. Visitors will be turned away at the door.
Join me in the 'HOPE' Club, that's what we can do for him right now.
Keep that happy thought.
Marilyn
He has, up to this point, loved having company. It always seemed to ignite something inside of him. We all just need to give him the time he needs to heal, for right now.
I knew when I started this blog to update you all that there might be times when I had to deliver 'bad' news. This is one of those times. He really needs the strength of his friends and family right now to get him through this tough time. He has a very tough, but gentle, spirit that keeps his head above the water.
Please pass this message along to everyone you know. Visitors will be turned away at the door.
Join me in the 'HOPE' Club, that's what we can do for him right now.
Keep that happy thought.
Marilyn
Monday, February 12, 2007
A Happy Place
This morning Dave's Docs gave him some pretty good news. He had a pretty good nights sleep, given the constant interrruptions. Dr. Anamur, the oncologist, said that he could have a 6 day break from the Chemo, so that they can evaluate it's progress on the Myeloma cells. He said that the numbers look good. That was good news. Dr. Damicis, his GP, said that the results of the tests for the kidneys were very positive. He said that his numbers are almost close to 'normal'. That was very good news. He also said that they were going to start with some physical therapy in order to move Dave (hopefully) to Rehab, with the ultimate goal of going home at some point. This was all great news for him this morning. He is certainly not completely out of the woods, but like I said before, a positive direction is food for the soul. Today was a positive direction. His appetite seems to be improving and he has a "Happy Place'. It's snuggling on the couch with his love, Kathy, drinking his Killians Red. All good.
We will know more as a new day dawns.
Keep your happy thought-it's working!
Marilyn
We will know more as a new day dawns.
Keep your happy thought-it's working!
Marilyn
Saturday, February 10, 2007
Medical Update
I just spoke with Kathy and she said that Dave was doing pretty well today. The docs were talking about maybe rehab next week in preparation for going home. I also heard from his mom, Phyllis, and his brother, Ray, that he had a very good night last night, lots of sleep, not much pain. He still has alot of healing to do. But the medicine and your thoughts and prayers seem to be working.
Keep those good thoughts,
Marilyn
Keep those good thoughts,
Marilyn
On line Transfers
If you are thinking about transfering funds online and don't do business with Bank of America, you would want to inquire with your bank about the cost of that. You will need the routing number for Bank of America, which is 011000138. The other option, online, is to do Bill Pay. In this case, you would set up the biller as Dave Tousignant Fund,
acct# 004607559442, and mail it to:
Bank of America, 105 Main Street, Pepperell, MA 01463. There should be no cost to you for this.
On behalf of Dave's family, we want to thank all of you for your incredible response, and remind you that if you would like to be recognized for your contribution, mail it to us (Tremblay, 76 West St, Pepperell, MA 01463) or if you are going into a Bank of America branch, write your name on the deposit slip at the bank. Online transactions would remain anonymous. But you can certainly drop me a line at manystrz@yahoo.com to let me know. We would like to thank you personally, but we also respect those who would like to remain anonymous.
Keep a happy thought,
Marilyn
acct# 004607559442, and mail it to:
Bank of America, 105 Main Street, Pepperell, MA 01463. There should be no cost to you for this.
On behalf of Dave's family, we want to thank all of you for your incredible response, and remind you that if you would like to be recognized for your contribution, mail it to us (Tremblay, 76 West St, Pepperell, MA 01463) or if you are going into a Bank of America branch, write your name on the deposit slip at the bank. Online transactions would remain anonymous. But you can certainly drop me a line at manystrz@yahoo.com to let me know. We would like to thank you personally, but we also respect those who would like to remain anonymous.
Keep a happy thought,
Marilyn
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